Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
SUBSÍDIOS QUE FINANCIAMOS
A EE concedeu milhões de dólares a equipes multidisciplinares em todo o mundo para avançar na pesquisa e no desenvolvimento de medicamentos para o 10% final de pessoas com FC.
Nosso programa de combinação de estudos clínicos sobre fibrose cística é direto ao consumidor, tornando o recrutamento de estudos mais rápido, mais direcionado e mais eficiente.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Durante o Mês de Conscientização sobre a FC, o Emily's Entourage convida os membros da comunidade de fibrose cística (FC) a compartilhar suas histórias. A postagem de hoje no blog destaca a história de... Leia mais
Cystic Fibrosis Awareness Month 2025 is here, and at Emily’s Entourage (EE), we’re celebrating the unwavering spirit of the cystic fibrosis (CF) community. This month... Leia mais
For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough has been challenging.... Leia mais
Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape where too many... Leia mais