EE concede $440.000 em financiamento da 6ª rodada para pesquisa sobre fibrose cística
We are thrilled to share that Emily’s Entourage (EE) has awarded $440,000 in funding for two new grants to advance cystic fibrosis (CF) research and... Leia mais
SUBSÍDIOS QUE FINANCIAMOS
A EE concedeu milhões de dólares a equipes multidisciplinares em todo o mundo para avançar na pesquisa e no desenvolvimento de medicamentos para o 10% final de pessoas com FC.
2025 EE GALA
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
BANCO DE DADOS DE PACIENTES
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
EE lança a campanha "Dare to be Rare" para a Semana das Doenças Raras
Rare Disease Week, which launches today ahead of Rare Disease Day on February 28, is a worldwide campaign to bring about critical awareness for rare... Leia mais
Perguntas e respostas com o primeiro diretor científico da EE, Dr. Chandra Ghose
We are so excited to announce that Chandra Ghose, PhD, has joined Emily’s Entourage (EE) as our first-ever Chief Scientific Officer. We caught up with... Leia mais
Aproveitamento de nossa superpotência
By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend If you know Emily, then you know that her superpowers are many.... Leia mais
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