{"id":15472,"date":"2021-04-27T14:38:08","date_gmt":"2021-04-27T18:38:08","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=15472"},"modified":"2023-12-20T02:46:33","modified_gmt":"2023-12-20T07:46:33","slug":"crossoutcf","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/pt\/crossoutcf\/","title":{"rendered":"PEGUE NUM MARCADOR E #CROSSOUTCF: MAIO \u00c9 O M\u00caS DE SENSIBILIZA\u00c7\u00c3O PARA A FIBROSE QU\u00cdSTICA"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Durante o M\u00eas de Sensibiliza\u00e7\u00e3o para a Fibrose C\u00edstica (FC), juntamo-nos como comunidade para divulgar a sensibiliza\u00e7\u00e3o, partilhar hist\u00f3rias pessoais e unirmo-nos numa miss\u00e3o comum para acelerar os avan\u00e7os e a cura da <\/span><b><i>todos<\/i><\/b><span style=\"font-weight: 400;\"> pessoas com FC.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Com base no conceito de \"linhas\" da campanha de fim de ano da EE \"The Magic Line\", o nosso tema para o m\u00eas \u00e9 \"Cross Out CF\". Vamos celebrar as \"linhas de vida\" que nos ligam e fortalecem, especialmente na vida com FC, e tamb\u00e9m sublinhar a nossa miss\u00e3o partilhada e urgente de eliminar a FC do universo! <\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-15473\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Newsletter-Graphic-1024x512.png\" alt=\"\" width=\"578\" height=\"289\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Newsletter-Graphic-1024x512.png 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Newsletter-Graphic-300x150.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Newsletter-Graphic-768x384.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Newsletter-Graphic-1536x768.png 1536w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Newsletter-Graphic-2048x1024.png 2048w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Newsletter-Graphic-16x8.png 16w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Newsletter-Graphic-600x300.png 600w\" sizes=\"(max-width: 578px) 100vw, 578px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">O conceito de \"linhas de vida\" assumiu uma import\u00e2ncia acrescida ao longo do \u00faltimo ano, uma vez que a pandemia manteve as pessoas fisicamente afastadas e, no entanto, recordou-nos a todos a essencialidade e a transcend\u00eancia da liga\u00e7\u00e3o. A experi\u00eancia de viver em quarentena ensinou-nos a encontrar novas formas de nos mantermos ligados, a perseverar e a lutar por avan\u00e7os para o 100% da comunidade da FC. <\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Por isso, um brinde \u00e0s liga\u00e7\u00f5es e ao apoio. Um brinde ao movimento para a frente e \u00e0 passagem da meta final. Este m\u00eas, todas as linhas conduzem a descobertas e curas r\u00e1pidas para que possamos #CrossOutCF<\/span> <span style=\"font-weight: 400;\">para 100% da comunidade de FC com <\/span><strong><em>ningu\u00e9m fica para tr\u00e1s<\/em><\/strong><span style=\"font-weight: 400;\">.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Eis como se pode juntar a n\u00f3s.\u00a0<\/span><\/p>\n<h2><b>VAMOS SER SOCIAIS<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Durante todo o m\u00eas, partilharemos reflex\u00f5es pessoais da comunidade da FC, factos do dia sobre a FC, recorda\u00e7\u00f5es da EE e apresentaremos cientistas incr\u00edveis da FC e membros da Entourage atrav\u00e9s de fotografias, v\u00eddeos, cita\u00e7\u00f5es e muito mais! O conte\u00fado ser\u00e1 apresentado em <\/span><a href=\"https:\/\/www.facebook.com\/EmilysEntourage\/\"><span style=\"font-weight: 400;\">Facebook<\/span><\/a><span style=\"font-weight: 400;\">, <\/span><span style=\"font-weight: 400;\">Instagram<\/span><span style=\"font-weight: 400;\">, <\/span><a href=\"https:\/\/twitter.com\/EmilysEntourage\"><span style=\"font-weight: 400;\">Twitter<\/span><\/a><span style=\"font-weight: 400;\">, <a href=\"http:\/\/linkedin.com\/company\/emilysentourage\">LinkedIn<\/a> e o nosso <\/span><a href=\"https:\/\/www.emilysentourage.org\/pt\/blog\/\"><span style=\"font-weight: 400;\">blogue<\/span><\/a><span style=\"font-weight: 400;\">. N\u00e3o se esque\u00e7am de acompanhar diariamente e de utilizar o hashtag #CrossOutCF nas vossas publica\u00e7\u00f5es! <\/span><\/p>\n<p><img decoding=\"async\" class=\"wp-image-15474 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Calendar-Post-280x300.png\" alt=\"\" width=\"240\" height=\"257\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Calendar-Post-280x300.png 280w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Calendar-Post-956x1024.png 956w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Calendar-Post-768x823.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Calendar-Post-1433x1536.png 1433w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Calendar-Post-1911x2048.png 1911w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Calendar-Post-11x12.png 11w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Calendar-Post-600x643.png 600w\" sizes=\"(max-width: 240px) 100vw, 240px\" \/><\/p>\n<h2><b>DOAR O SEU FUNDO DE ZOOM<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Talvez nenhuma plataforma nos tenha mantido mais ligados ao longo do \u00faltimo ano do que o Zoom. Nesta altura, todos n\u00f3s precisamos de um novo e excitante fundo para as nossas chamadas. Por isso, crie um fundo que aumente a sensibiliza\u00e7\u00e3o para a FC e nos aproxime do nosso objetivo de #crossoutcf!\u00a0<\/span><\/p>\n<p><b>Adicione um fundo Zoom personalizado a todos os seus planos virtuais:<\/b><\/p>\n<ol>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Descarregar o \"<\/span><span style=\"font-weight: 400;\">Riscar CF<\/span><span style=\"font-weight: 400;\">\" fundo <\/span><a href=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Zoom-Background.png\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">aqui<\/span><\/a><span style=\"font-weight: 400;\">\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Enquanto estiver conectado ao Zoom, clique no ^ ao lado de \"Iniciar v\u00eddeo\"<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Clique em \"Escolher fundo virtual\"<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Clique no + para adicionar uma nova imagem de fundo<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Clique em \"Adicionar imagem\" e, em seguida, seleccione a op\u00e7\u00e3o \"<\/span><span style=\"font-weight: 400;\">Riscar CF<\/span><span style=\"font-weight: 400;\">\" imagem<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Desmarque a op\u00e7\u00e3o \"Espelhar o meu v\u00eddeo\" para se certificar de que a imagem n\u00e3o est\u00e1 ao contr\u00e1rio<\/span><\/li>\n<\/ol>\n<h2><b>DOAR O SEU FACEBOOK<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">H\u00e1 duas formas de transformar a sua p\u00e1gina do Facebook num poderoso cartaz de apoio ao M\u00eas da Sensibiliza\u00e7\u00e3o para a FC:\u00a0<\/span><\/p>\n<p><b>1. Adicione uma moldura EE tempor\u00e1ria \u00e0 sua fotografia de perfil do Facebook\u00a0<\/b><\/p>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Aceda \u00e0 sua fotografia de perfil do Facebook e clique no bot\u00e3o \"Atualizar\" da c\u00e2mara.\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Seleccione \"Adicionar moldura\".\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Procure a moldura \"2021 EE CF Awareness Month\" (Cross Out CF), seleccione-a e clique em \"Utilizar como imagem de perfil\"<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<p><b>2. Alterar a fotografia de capa do Facebook para o m\u00eas de maio\u00a0<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Instru\u00e7\u00f5es para telem\u00f3veis<\/span><\/p>\n<ol>\n<li aria-level=\"1\">Descarregar a fotografia de capa \"Cross Out CF <a href=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042921-V2_Facebook-Cover-Photo-1.png\" target=\"_blank\" rel=\"noopener\">aqui<\/a><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Prima e mantenha premida a imagem at\u00e9 ver a op\u00e7\u00e3o \"Guardar imagem\"\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Quando a imagem estiver guardada no rolo da c\u00e2mara, aceda \u00e0 sua p\u00e1gina do Facebook<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Clique no bot\u00e3o \"Editar\" na sua fotografia de capa atual e, em seguida, escolha \"Carregar fotografia\"\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Escolha a imagem \"Cross Out CF\" guardada no rolo da c\u00e2mara, arraste-a para a ajustar e prima \"Guardar\"\u00a0<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Instru\u00e7\u00f5es para o ambiente de trabalho<\/span><\/p>\n<ol>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Clicar na fotografia de capa \"Cross Out CF\" na p\u00e1gina do Facebook da EE\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Fa\u00e7a duplo clique na imagem e seleccione \"Guardar imagem como\"<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Quando a imagem estiver guardada no seu computador, v\u00e1 para a sua p\u00e1gina do Facebook<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Clique em \"Atualizar fotografia de capa\" no canto superior esquerdo e, em seguida, seleccione \"Carregar fotografia\"<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Escolha a fotografia de capa \"Cross Out CF\" guardada no seu computador, arraste-a para a ajustar e prima \"Guardar altera\u00e7\u00f5es\"\u00a0<\/span><\/li>\n<\/ol>\n<h2><b>MARQUEM OS VOSSOS CALEND\u00c1RIOS E REGISTEM-SE<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Junte-se \u00e0 EE para o 6\u00ba EENY anual, \"The Magic Line: Desenhando um futuro sem CF, \"que est\u00e1 sendo realizado virtualmente na quarta-feira, 19 de maio de 2021 \u00e0s 8h ET \/ 7h CT \/ 5h PT.\u00a0\u00a0<\/span><span style=\"font-weight: 400;\">O tema deste ano, \"Desenhar um futuro sem FC\", expande o conceito de linhas e recorda-nos o nosso poder de criar o mundo com que sonhamos - um mundo sem FC. A noite inclui uma entrevista com Emily Kramer-Golinkoff e Rebecca Jarvis, correspondente da ABC News para os neg\u00f3cios, tecnologia e economia, a apresentadora Erin Foster, actua\u00e7\u00f5es musicais, vozes da comunidade da FC e muito mais.\u00a0<\/span><\/p>\n<p><img decoding=\"async\" class=\"aligncenter wp-image-15477\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EENY-2021-STD-1-1-1024x572.png\" alt=\"\" width=\"471\" height=\"263\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EENY-2021-STD-1-1-1024x572.png 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EENY-2021-STD-1-1-300x168.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EENY-2021-STD-1-1-768x429.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EENY-2021-STD-1-1-1536x858.png 1536w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EENY-2021-STD-1-1-2048x1143.png 2048w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EENY-2021-STD-1-1-16x9.png 16w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EENY-2021-STD-1-1-600x335.png 600w\" sizes=\"(max-width: 471px) 100vw, 471px\" \/><\/p>\n<p><span style=\"font-weight: 400;\"> O registo \u00e9 gratuito, mas \u00e9 necess\u00e1rio com anteced\u00eancia. Para se registar, tornar-se patrocinador ou fazer um donativo, clique em <a href=\"https:\/\/www.emilysentourage.org\/pt\/press-release-5-14-21\/\">aqui<\/a>.<\/span><\/p>\n<p>&nbsp;<\/p>\n<h2 style=\"text-align: center;\"><span style=\"color: #490c66;\"><strong>OBRIGADO AOS NOSSOS PATROCINADORES DO M\u00caS DE SENSIBILIZA\u00c7\u00c3O PARA A CF\u00a0<\/strong><\/span><\/h2>\n<p style=\"text-align: left;\"><span style=\"color: #490c66;\"><strong><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-14473 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/1280px-Vertex_logo.svg-copy-300x159.png\" alt=\"\" width=\"207\" height=\"110\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/1280px-Vertex_logo.svg-copy-300x159.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/1280px-Vertex_logo.svg-copy.png 600w\" sizes=\"(max-width: 207px) 100vw, 207px\" \/><\/strong><\/span><\/p>\n<p><strong style=\"color: #490c66;\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-15483 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Copy-of-Untitled-1-1-1024x119.png\" alt=\"\" width=\"415\" height=\"48\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Copy-of-Untitled-1-1-1024x119.png 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Copy-of-Untitled-1-1-300x35.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Copy-of-Untitled-1-1-768x89.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Copy-of-Untitled-1-1-1536x178.png 1536w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Copy-of-Untitled-1-1-16x2.png 16w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Copy-of-Untitled-1-1-600x70.png 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Copy-of-Untitled-1-1.png 1602w\" sizes=\"(max-width: 415px) 100vw, 415px\" \/><\/strong><\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><strong>Produtos farmac\u00eauticos Arrowhead <\/strong><\/p>\n<p style=\"text-align: center;\"><strong>Chiesi USA, Inc.<\/strong><\/p>\n<p style=\"text-align: center;\"><strong>Pintar com os dedos <\/strong><\/p>\n<p style=\"text-align: center;\"><strong>Ionis <\/strong><\/p>\n<p style=\"text-align: center;\"><strong>Traduzir biografia<\/strong><\/p>\n<p>&nbsp;<\/p>\n<p><i><span style=\"font-weight: 400;\">A Emily's Entourage est\u00e1 extremamente orgulhosa e grata a todos os patrocinadores corporativos que se juntaram para participar neste importante movimento de sensibiliza\u00e7\u00e3o para a Fibrose Qu\u00edstica, para os progressos no sentido de uma cura e, especialmente, para o trabalho que ainda tem de ser feito para os 10% finais. A EE espera que se sinta inspirado a participar nos nossos esfor\u00e7os, aproximando-nos do dia em que 100% da popula\u00e7\u00e3o com FC possa respirar mais facilmente.\u00a0<\/span><\/i><\/p>","protected":false},"excerpt":{"rendered":"<p>During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a common mission to speed breakthroughs and a cure for all people with CF.\u00a0 Drawing on the concept of \u201clines\u201d from EE&#8217;s \u201cThe Magic Line\u201d year-end campaign, our theme for the month is \u201cCross&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/pt\/crossoutcf\/\" class=\"excerpt-read-more\">Ler mais<\/a><\/p>","protected":false},"author":1281,"featured_media":15494,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[52,77,7],"class_list":["post-15472","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-cf-awareness","tag-cf-awareness-month","tag-cystic-fibrosis"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Cross-Out-CF-Base-Purple-with-Beige-Scribble.png","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/posts\/15472","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/comments?post=15472"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/posts\/15472\/revisions"}],"predecessor-version":[{"id":20339,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/posts\/15472\/revisions\/20339"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/media\/15494"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/media?parent=15472"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/categories?post=15472"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/tags?post=15472"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}