{"id":13074,"date":"2019-06-04T07:35:19","date_gmt":"2019-06-04T11:35:19","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13074"},"modified":"2023-12-20T05:20:55","modified_gmt":"2023-12-20T10:20:55","slug":"emily-speaks-at-the-2019-bio-international-convention-in-philadelphia","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/pt\/emily-speaks-at-the-2019-bio-international-convention-in-philadelphia\/","title":{"rendered":"Emily discursa na Conven\u00e7\u00e3o Internacional BIO de 2019, em Filad\u00e9lfia"},"content":{"rendered":"

A Emily's Entourage (EE) est\u00e1 a participar na Conven\u00e7\u00e3o Internacional BIO 2019<\/a> no Centro de Conven\u00e7\u00f5es da Pensilv\u00e2nia, em Filad\u00e9lfia, PA. No primeiro dia, a co-fundadora da EE, Emily Kramer-Golinkoff, foi entrevistada para Bio de bom dia<\/a>um programa de entrevistas televisivo transmitido em hot\u00e9is de Filad\u00e9lfia e em salas de reuni\u00f5es do centro de conven\u00e7\u00f5es durante a semana, apresentado por Mike Huckman, Global Practice Leader, Executive Communications do W2O Group. No talk show, Emily partilhou a perspetiva do doente e falou sobre a miss\u00e3o e o trabalho que a EE est\u00e1 a fazer para as muta\u00e7\u00f5es sem sentido da Fibrose Qu\u00edstica (FC). <\/span><\/p>\n

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No segundo dia, Emily participar\u00e1 na conversa \u00e0 beira do fogo intitulada \"Understanding the Voices of Patients: Unique Perspective on Healthcare\" (Compreender as vozes dos doentes: uma perspetiva \u00fanica dos cuidados de sa\u00fade), \u00e0s 11h00 do dia 4 de junho. A Emily juntar-se-\u00e1 a Christopher Anselmo, M<\/span>Diretor de Intelig\u00eancia de Mercado da<\/span> da Muscular Dystrophy Association e Eve Bukowski, Vice-presidente da Patient Advocacy da CLCA. Esta sess\u00e3o principal ser\u00e1 moderada por Julie Gerberding, Vice-Presidente Executiva e Diretora de Doentes da Merck & Co, Inc. <\/span><\/p>\n

O painel centrar-se-\u00e1 no papel cr\u00edtico e evolutivo dos doentes ao longo dos anos, que n\u00e3o s\u00f3 est\u00e3o cada vez mais envolvidos na condu\u00e7\u00e3o dos seus pr\u00f3prios cuidados de sa\u00fade, como tamb\u00e9m defendem incansavelmente o avan\u00e7o da investiga\u00e7\u00e3o e do desenvolvimento de medicamentos e a garantia de pol\u00edticas p\u00fablicas que apoiem os doentes. No painel, Emily e os seus colegas partilhar\u00e3o os seus percursos na \u00e1rea da sa\u00fade, as suas perspectivas sobre o que significa ser um doente e a forma como defendem a acelera\u00e7\u00e3o do acesso dos doentes aos tratamentos.<\/span><\/p>\n

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A Conven\u00e7\u00e3o Internacional BIO \u00e9 um evento anual organizado pela Organiza\u00e7\u00e3o de Inova\u00e7\u00e3o Biotecnol\u00f3gica, reunindo mais de 16.000 participantes de 74 pa\u00edses e apresentando mais de 1.500 sess\u00f5es educacionais. A EE est\u00e1 grata por ter mais uma vez a oportunidade de assistir e participar nesta confer\u00eancia e aguarda com expetativa novas colabora\u00e7\u00f5es com organiza\u00e7\u00f5es que partilham a mesma vontade de levar terapias r\u00e1pidas e transformadoras aos doentes. <\/span><\/p>","protected":false},"excerpt":{"rendered":"

Emily\u2019s Entourage (EE) is attending the 2019 BIO International Convention at the Pennsylvania Convention Center in Philadelphia, PA. On Day 1, EE co-founder Emily Kramer-Golinkoff was interviewed for Good Day Bio, a TV talk show broadcast in hotels around Philadelphia and in meeting halls throughout the convention center during the week, hosted by by Mike… <\/p>\n

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