{"id":16142,"date":"2021-10-15T14:01:34","date_gmt":"2021-10-15T18:01:34","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?page_id=16142"},"modified":"2021-12-10T15:04:58","modified_gmt":"2021-12-10T20:04:58","slug":"cf-crew","status":"publish","type":"page","link":"https:\/\/www.emilysentourage.org\/pt\/cf-crew\/","title":{"rendered":"Junte-se \u00e0 equipa do CureFinders"},"content":{"rendered":"<p><span style=\"font-weight: 400;\"><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-16212\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-300x100.png\" alt=\"\" width=\"1385\" height=\"462\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-300x100.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-1024x341.png 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-768x256.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-1536x512.png 1536w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-2048x683.png 2048w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-18x6.png 18w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-600x200.png 600w\" sizes=\"(max-width: 1385px) 100vw, 1385px\" \/><\/span><\/p>\n<p><span style=\"font-weight: 400;\">N\u00e3o h\u00e1 ningu\u00e9m com mais interesse no r\u00e1pido progresso dos \u00faltimos 10% da comunidade da fibrose c\u00edstica (FC) do que aqueles que vivem com a doen\u00e7a e as pessoas que os amam. A CureFinders Crew (CF Crew) foi criada a pensar em si - para proporcionar um espa\u00e7o onde a comunidade da FC se possa reunir para apoiar a miss\u00e3o da Emily's Entourage (EE) de acelerar a investiga\u00e7\u00e3o e o desenvolvimento de medicamentos que salvam vidas para os 10% finais da comunidade da FC, incluindo os que t\u00eam muta\u00e7\u00f5es nonsense da FC.<\/span><\/p>\n<blockquote><p><span style=\"font-weight: 400;\">Nunca subestime a sua voz, o seu c\u00e9rebro, a sua criatividade, as suas ideias e o seu poder. Eles movem montanhas. - Emily Kramer-Golinkoff, co-fundadora, Emily's Entourage<\/span><\/p><\/blockquote>\n<h3><strong>Porqu\u00ea juntar-se ao CF Crew?<\/strong><\/h3>\n<h3><strong><img decoding=\"async\" class=\"alignright wp-image-16143\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6.png\" alt=\"\" width=\"400\" height=\"372\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6.png 959w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-300x279.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-768x715.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-13x12.png 13w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-600x559.png 600w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/strong><\/h3>\n<p><span style=\"font-weight: 400;\">A Emily's Entourage acredita que NINGU\u00c9M deve ser deixado para tr\u00e1s e que todas as pessoas com FC merecem uma esperan\u00e7a realista num futuro e uma respira\u00e7\u00e3o profunda. Como parte da CF Crew, pode ajudar-nos a conseguir a t\u00e3o necess\u00e1ria mudan\u00e7a para os 10% finais, partilhando a sua hist\u00f3ria e envolvendo a sua rede. Tem o poder de fazer a diferen\u00e7a e de ajudar a financiar o nosso investimento agressivo na investiga\u00e7\u00e3o e no desenvolvimento de medicamentos, aproximando-nos do nosso objetivo comum de avan\u00e7os r\u00e1pidos para os 100% da comunidade da FC - <b>ningu\u00e9m fica para tr\u00e1s<\/b>.&nbsp;<\/span><\/p>\n<h3><strong>Quem pode participar?<\/strong><\/h3>\n<p><span style=\"font-weight: 400;\">A CF Crew est\u00e1 aberta a qualquer pessoa que tenha uma liga\u00e7\u00e3o \u00e0 FC - quer fa\u00e7a parte do 10% final ou do 90% que experimentou, em primeira m\u00e3o, o impacto transformador da vida de uma terapia direcionada para a muta\u00e7\u00e3o.&nbsp;<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Ir\u00e1 juntar-se a um grupo especial de fam\u00edlias com FC que fazem mudan\u00e7as, que movem montanhas e que est\u00e3o a trabalhar para conseguir avan\u00e7os r\u00e1pidos e abrangentes para os 10% finais. E, como sabe mais intimamente do que qualquer outra pessoa, esse progresso n\u00e3o pode chegar suficientemente depressa!<\/span><\/p>\n<p style=\"text-align: center;\">&nbsp;<a class=\"fasc-button fasc-size-large fasc-type-flat fasc-rounded-medium fasc-style-bold\" style=\"background-color: #462561; color: #ffffff;\" target=\"_blank\" href=\"https:\/\/www.emilysentourage.org\/pt\/contact-us\/\" rel=\"noopener\">CONTACTE-NOS PARA SABER MAIS<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>N\u00e3o h\u00e1 ningu\u00e9m com um interesse mais profundo no r\u00e1pido avan\u00e7o do 10% final da comunidade da fibrose c\u00edstica (FC) do que aqueles que vivem com a doen\u00e7a e as pessoas que os amam. A CureFinders Crew (CF Crew) foi criada a pensar em voc\u00eas \u2014 para proporcionar um espa\u00e7o onde a comunidade da FC possa reunir-se\u2026 <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/pt\/cf-crew\/\" class=\"excerpt-read-more\">Ler mais<\/a><\/p>","protected":false},"author":1281,"featured_media":16211,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_seopress_titles_title":"Emily&#039;s Entourage &gt;&gt; Join the CureFinders Crew","_seopress_titles_desc":"The CureFinders Crew (CF Crew) was created with the cystic fibrosis community in mind \u2014 to provide a space where they can come together in support of Emily\u2019s Entourage\u2019s (EE\u2019s) mission to speed lifesaving research and drug development for the final 10% of the CF community.","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[{"_seopress_pro_rich_snippets_type":"none"}],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"footnotes":""},"class_list":["post-16142","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/pages\/16142","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/comments?post=16142"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/pages\/16142\/revisions"}],"predecessor-version":[{"id":16447,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/pages\/16142\/revisions\/16447"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/media\/16211"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/media?parent=16142"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}