{"id":16142,"date":"2021-10-15T14:01:34","date_gmt":"2021-10-15T18:01:34","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?page_id=16142"},"modified":"2021-12-10T15:04:58","modified_gmt":"2021-12-10T20:04:58","slug":"cf-crew","status":"publish","type":"page","link":"https:\/\/www.emilysentourage.org\/pt\/cf-crew\/","title":{"rendered":"Junte-se \u00e0 equipa do CureFinders"},"content":{"rendered":"<p><span style=\"font-weight: 400;\"><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-16212\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-300x100.png\" alt=\"\" width=\"1385\" height=\"462\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-300x100.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-1024x341.png 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-768x256.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-1536x512.png 1536w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-2048x683.png 2048w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-18x6.png 18w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-600x200.png 600w\" sizes=\"(max-width: 1385px) 100vw, 1385px\" \/><\/span><\/p>\n<p><span style=\"font-weight: 400;\">N\u00e3o h\u00e1 ningu\u00e9m com mais interesse no r\u00e1pido progresso dos \u00faltimos 10% da comunidade da fibrose c\u00edstica (FC) do que aqueles que vivem com a doen\u00e7a e as pessoas que os amam. A CureFinders Crew (CF Crew) foi criada a pensar em si - para proporcionar um espa\u00e7o onde a comunidade da FC se possa reunir para apoiar a miss\u00e3o da Emily's Entourage (EE) de acelerar a investiga\u00e7\u00e3o e o desenvolvimento de medicamentos que salvam vidas para os 10% finais da comunidade da FC, incluindo os que t\u00eam muta\u00e7\u00f5es nonsense da FC.<\/span><\/p>\n<blockquote><p><span style=\"font-weight: 400;\">Nunca subestime a sua voz, o seu c\u00e9rebro, a sua criatividade, as suas ideias e o seu poder. Eles movem montanhas. - Emily Kramer-Golinkoff, co-fundadora, Emily's Entourage<\/span><\/p><\/blockquote>\n<h3><strong>Porqu\u00ea juntar-se ao CF Crew?<\/strong><\/h3>\n<h3><strong><img decoding=\"async\" class=\"alignright wp-image-16143\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6.png\" alt=\"\" width=\"400\" height=\"372\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6.png 959w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-300x279.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-768x715.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-13x12.png 13w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-600x559.png 600w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/strong><\/h3>\n<p><span style=\"font-weight: 400;\">A Emily's Entourage acredita que NINGU\u00c9M deve ser deixado para tr\u00e1s e que todas as pessoas com FC merecem uma esperan\u00e7a realista num futuro e uma respira\u00e7\u00e3o profunda. Como parte da CF Crew, pode ajudar-nos a conseguir a t\u00e3o necess\u00e1ria mudan\u00e7a para os 10% finais, partilhando a sua hist\u00f3ria e envolvendo a sua rede. Tem o poder de fazer a diferen\u00e7a e de ajudar a financiar o nosso investimento agressivo na investiga\u00e7\u00e3o e no desenvolvimento de medicamentos, aproximando-nos do nosso objetivo comum de avan\u00e7os r\u00e1pidos para os 100% da comunidade da FC - <b>ningu\u00e9m fica para tr\u00e1s<\/b>.&nbsp;<\/span><\/p>\n<h3><strong>Quem pode participar?<\/strong><\/h3>\n<p><span style=\"font-weight: 400;\">A CF Crew est\u00e1 aberta a qualquer pessoa que tenha uma liga\u00e7\u00e3o \u00e0 FC - quer fa\u00e7a parte do 10% final ou do 90% que experimentou, em primeira m\u00e3o, o impacto transformador da vida de uma terapia direcionada para a muta\u00e7\u00e3o.&nbsp;<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Ir\u00e1 juntar-se a um grupo especial de fam\u00edlias com FC que fazem mudan\u00e7as, que movem montanhas e que est\u00e3o a trabalhar para conseguir avan\u00e7os r\u00e1pidos e abrangentes para os 10% finais. E, como sabe mais intimamente do que qualquer outra pessoa, esse progresso n\u00e3o pode chegar suficientemente depressa!<\/span><\/p>\n<p style=\"text-align: center;\">&nbsp;<a class=\"fasc-button fasc-size-large fasc-type-flat fasc-rounded-medium fasc-style-bold\" style=\"background-color: #462561; color: #ffffff;\" target=\"_blank\" href=\"https:\/\/www.emilysentourage.org\/pt\/contact-us\/\" rel=\"noopener\">CONTACTE-NOS PARA SABER MAIS<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>There is nobody with a deeper vested interest in fast progress for the final 10% of the cystic fibrosis (CF) community than those living with the disease and the people who love them. The CureFinders Crew (CF Crew) was created with you in mind \u2014 to provide a space where the CF community can come&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/pt\/cf-crew\/\" class=\"excerpt-read-more\">Ler mais<\/a><\/p>","protected":false},"author":1281,"featured_media":16211,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"","_seopress_titles_title":"Emily&#039;s Entourage &gt;&gt; Join the CureFinders Crew","_seopress_titles_desc":"The CureFinders Crew (CF Crew) was created with the cystic fibrosis community in mind \u2014 to provide a space where they can come together in support of Emily\u2019s Entourage\u2019s (EE\u2019s) mission to speed lifesaving research and drug development for the final 10% of the CF community.","_seopress_robots_index":"","_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-16142","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/pages\/16142","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/comments?post=16142"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/pages\/16142\/revisions"}],"predecessor-version":[{"id":16447,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/pages\/16142\/revisions\/16447"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/media\/16211"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/pt\/wp-json\/wp\/v2\/media?parent=16142"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}