From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. Today’s guest is Nicole Kohr, a 27-year-old double lung transplant recipient with nonsense mutations of Cystic Fibrosis. Let me set the scene, I was a young child suffering through yet … Continue reading Listening Isn’t Nonsense: Becoming Your Own Patient Advocate