{"id":13074,"date":"2019-06-04T07:35:19","date_gmt":"2019-06-04T11:35:19","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13074"},"modified":"2023-12-20T05:20:55","modified_gmt":"2023-12-20T10:20:55","slug":"emily-speaks-at-the-2019-bio-international-convention-in-philadelphia","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/it\/emily-speaks-at-the-2019-bio-international-convention-in-philadelphia\/","title":{"rendered":"Emily interviene al convegno internazionale BIO 2019 di Philadelphia"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">L'entourage di Emily (EE) parteciper\u00e0 all'evento <a href=\"https:\/\/www.bio.org\/events\/bio-international-convention\" target=\"_blank\" rel=\"noopener noreferrer\">Congresso internazionale BIO 2019<\/a> presso il Pennsylvania Convention Center di Philadelphia, PA. Il primo giorno, la cofondatrice di EE Emily Kramer-Golinkoff \u00e8 stata intervistata per <a href=\"https:\/\/youtu.be\/cyMT8o3qiT8\" target=\"_blank\" rel=\"noopener noreferrer\">Buona giornata Bio<\/a>, un talk show televisivo trasmesso negli hotel di Philadelphia e nelle sale riunioni del centro congressi durante la settimana, condotto da Mike Huckman, Global Practice Leader, Executive Communications di W2O Group. Nel talk show, Emily ha condiviso il punto di vista dei pazienti e ha parlato della missione e del lavoro che EE sta svolgendo per le mutazioni nonsense della fibrosi cistica (FC). <\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-full wp-image-13079 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n.jpg\" alt=\"\" width=\"851\" height=\"315\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n.jpg 851w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n-300x111.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n-768x284.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n-600x222.jpg 600w\" sizes=\"(max-width: 851px) 100vw, 851px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">Il secondo giorno, Emily parteciper\u00e0 alla Fireside Chat intitolata \"Understanding the Voices of Patients: Una prospettiva unica sull'assistenza sanitaria\" alle 11 del 4 giugno. Emily sar\u00e0 affiancata da Christopher Anselmo, M<\/span><span style=\"font-weight: 400;\">Responsabile dell'intelligence di mercato di<\/span><span style=\"font-weight: 400;\"> dell'Associazione per la distrofia muscolare e Eve Bukowski, vicepresidente della sezione Patient Advocacy della CLCA. La sessione principale sar\u00e0 moderata da Julie Gerberding, Vicepresidente esecutivo e Chief Patient Officer di Merck &amp; Co, Inc. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Il panel si concentrer\u00e0 sul ruolo critico ed evolutivo dei pazienti che, nel corso degli anni, non solo sono sempre pi\u00f9 coinvolti nella gestione della propria assistenza sanitaria, ma si impegnano instancabilmente per far progredire la ricerca e lo sviluppo dei farmaci e per garantire politiche pubbliche a sostegno dei pazienti. Emily e i suoi colleghi condivideranno i loro percorsi di salute, le loro prospettive su cosa significhi essere un paziente e come si stanno impegnando per far arrivare pi\u00f9 velocemente i trattamenti ai pazienti.<\/span><\/p>\n<p><img decoding=\"async\" class=\"size-full wp-image-13082 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg\" alt=\"\" width=\"900\" height=\"563\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1-300x188.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1-768x480.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1-600x375.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">La BIO International Convention \u00e8 un evento annuale ospitato dalla Biotechnology Innovation Organization, che riunisce oltre 16.000 partecipanti da 74 Paesi e presenta oltre 1.500 sessioni formative. EE \u00e8 grata di avere ancora una volta l'opportunit\u00e0 di assistere e partecipare a questa conferenza e attende con ansia nuove collaborazioni con organizzazioni che condividono la stessa volont\u00e0 di portare ai pazienti terapie rapide e trasformative. <\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Emily\u2019s Entourage (EE) is attending the 2019 BIO International Convention at the Pennsylvania Convention Center in Philadelphia, PA. On Day 1, EE co-founder Emily Kramer-Golinkoff was interviewed for Good Day Bio, a TV talk show broadcast in hotels around Philadelphia and in meeting halls throughout the convention center during the week, hosted by by Mike&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/it\/emily-speaks-at-the-2019-bio-international-convention-in-philadelphia\/\" class=\"excerpt-read-more\">Per saperne di pi\u00f9<\/a><\/p>","protected":false},"author":1704,"featured_media":13082,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[{"url":"","title":"","desc":"","thumbnail":"","duration":"","rating":"","view_count":"","tag":"","cat":""}],"_seopress_pro_schemas_manual":null,"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[93,94,98,12,99,95,103,96,102,100],"class_list":["post-13074","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-bio-international-convention","tag-bio2019","tag-christopher-anselmo","tag-emilys-entourage","tag-eve-bukowski","tag-good-day-bio","tag-life-sciences","tag-mike-huckman","tag-muscular-dystrophy","tag-philadelphia"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/posts\/13074","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/comments?post=13074"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/posts\/13074\/revisions"}],"predecessor-version":[{"id":20547,"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/posts\/13074\/revisions\/20547"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/media\/13082"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/media?parent=13074"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/categories?post=13074"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/it\/wp-json\/wp\/v2\/tags?post=13074"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}