{"id":5874,"date":"2017-03-27T00:38:00","date_gmt":"2017-03-27T04:38:00","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=5874"},"modified":"2018-02-14T12:34:07","modified_gmt":"2018-02-14T17:34:07","slug":"personalized-medicine-coalition-congressional-briefing-lobbying","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/he\/personalized-medicine-coalition-congressional-briefing-lobbying\/","title":{"rendered":"\u05ea\u05d3\u05e8\u05d5\u05da \u05d5\u05e7\u05d5\u05e0\u05d2\u05e8\u05e1 \u05e9\u05dc \u05e7\u05d5\u05d0\u05dc\u05d9\u05e6\u05d9\u05d9\u05ea \u05d4\u05e8\u05e4\u05d5\u05d0\u05d4 \u05d4\u05d0\u05d9\u05e9\u05d9\u05ea"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">\u05d2\u05d1&#039; \u05e7\u05e8\u05de\u05e8-\u05d2\u05d5\u05dc\u05d9\u05e0\u05e7\u05d5\u05d1 \u05d4\u05d5\u05dc\u05db\u05ea \u05dc\u05d5\u05d5\u05e9\u05d9\u05e0\u05d2\u05d8\u05d5\u05df! \u05d0\u05de\u05d9\u05dc\u05d9, \u05db\u05e9\u05d4\u05d9\u05d0 \u05de\u05e0\u05d9\u05e4\u05d4 \u05e9\u05dc\u05d5\u05dd \u05dc\u05d1\u05d9\u05ea \u05d4\u05dc\u05d1\u05df, \u05e9\u05d1\u05d4 \u05d1\u05d9\u05e7\u05e8\u05d4 \u05db\u05de\u05d4 \u05e4\u05e2\u05de\u05d9\u05dd \u05d1\u05e9\u05e0\u05d4 \u05e9\u05e2\u05d1\u05e8\u05d4, \u05e4\u05e0\u05ea\u05d4 \u05dc\u05d2\u05d1\u05e2\u05d4 \u05d1\u05e9\u05d1\u05d5\u05e2 \u05e9\u05e2\u05d1\u05e8 \u05db\u05d3\u05d9 \u05dc\u05e2\u05d5\u05d3\u05d3 \u05e1\u05e0\u05d0\u05d8\u05d5\u05e8\u05d9\u05dd, \u05e6\u05d5\u05d5\u05ea\u05d9\u05d4\u05dd \u05d5\u05e7\u05d5\u05d1\u05e2\u05d9 \u05de\u05d3\u05d9\u05e0\u05d9\u05d5\u05ea \u05d0\u05d7\u05e8\u05d9\u05dd \u05dc\u05d2\u05d1\u05d9 \u05d4\u05e6\u05e8\u05db\u05d9\u05dd \u05d4\u05d3\u05d7\u05d5\u05e4\u05d9\u05dd, \u05d4\u05d1\u05dc\u05ea\u05d9 \u05de\u05e1\u05d5\u05e4\u05e7\u05d9\u05dd, \u05d1\u05e8\u05e4\u05d5\u05d0\u05d4 \u05de\u05d5\u05ea\u05d0\u05de\u05ea \u05d0\u05d9\u05e9\u05d9\u05ea \u05e2\u05d1\u05d5\u05e8 \u05d0\u05dc\u05d4 \u05e2\u05dd \u05de\u05d7\u05dc\u05d5\u05ea \u05e0\u05d3\u05d9\u05e8\u05d5\u05ea \u05db\u05de\u05d5 \u05e1\u05d9\u05e1\u05d8\u05d9\u05e7 \u05e4\u05d9\u05d1\u05e8\u05d5\u05d6\u05d9\u05e1.<\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-5881 size-full\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2809-2.jpg\" alt=\"\" width=\"1280\" height=\"960\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2809-2.jpg 1280w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2809-2-600x450.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2809-2-300x225.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2809-2-768x576.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2809-2-1024x768.jpg 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2809-2-400x300.jpg 400w\" sizes=\"(max-width: 1280px) 100vw, 1280px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">\u05d0\u05de\u05d9\u05dc\u05d9 \u05d4\u05ea\u05d7\u05d9\u05dc\u05d4 \u05d0\u05ea \u05d9\u05d5\u05de\u05d4 \u05d1\u05d7\u05d3\u05e8 \u05d4\u05e7\u05d5\u05e7\u05d5\u05e1 \u05e9\u05dc \u05e7\u05e0\u05d3\u05d9 \u05d1\u05e1\u05e0\u05d0\u05d8 \u05e9\u05dc \u05d0\u05e8\u05e6\u05d5\u05ea \u05d4\u05d1\u05e8\u05d9\u05ea, \u05db\u05e9\u05d4\u05d9\u05d0 \u05d9\u05d5\u05e9\u05d1\u05ea \u05d1\u05e4\u05d0\u05e0\u05dc \u05e9\u05d0\u05d5\u05e8\u05d2\u05df \u05e2\u05dc \u05d9\u05d3\u05d9 \u05e7\u05d5\u05d0\u05dc\u05d9\u05e6\u05d9\u05d9\u05ea \u05d4\u05e8\u05e4\u05d5\u05d0\u05d4 \u05d4\u05d0\u05d9\u05e9\u05d9\u05ea \u05dc\u05e6\u05d3 \u05e0\u05e6\u05d9\u05d2\u05d9\u05dd \u05de\u05ea\u05e2\u05e9\u05d9\u05d9\u05ea \u05d4\u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05d5\u05d4\u05d3\u05d9\u05d0\u05d2\u05e0\u05d5\u05e1\u05d8\u05d9\u05e7\u05d4. \u05d4\u05e0\u05d5\u05e9\u05d0 \u05e9\u05e2\u05dc \u05d4\u05e4\u05e8\u05e7 \u05d4\u05d9\u05d4 \u05db\u05d9\u05e6\u05d3 \u05e8\u05e4\u05d5\u05d0\u05d4 \u05de\u05d5\u05ea\u05d0\u05de\u05ea \u05d0\u05d9\u05e9\u05d9\u05ea \u05d9\u05db\u05d5\u05dc\u05d4 \u05dc\u05d8\u05e4\u05d7 \u05d7\u05d3\u05e9\u05e0\u05d5\u05ea \u05d5\u05dc\u05e9\u05e4\u05e8 \u05d0\u05ea \u05d0\u05d9\u05db\u05d5\u05ea \u05e9\u05d9\u05e8\u05d5\u05ea\u05d9 \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d5\u05dc\u05d4\u05d5\u05d6\u05d9\u05dc \u05e2\u05dc\u05d5\u05d9\u05d5\u05ea, \u05d5\u05d0\u05d9\u05d6\u05d5 \u05de\u05d3\u05d9\u05e0\u05d9\u05d5\u05ea \u05e6\u05d9\u05d1\u05d5\u05e8\u05d9\u05ea \u05d9\u05db\u05d5\u05dc\u05d4 \u05dc\u05d4\u05d0\u05d9\u05e5 \u05d0\u05d5 \u05dc\u05d7\u05e0\u05d5\u05e7 \u05d0\u05ea \u05d4\u05ea\u05e4\u05ea\u05d7\u05d5\u05ea \u05d4\u05ea\u05d7\u05d5\u05dd.<\/span><\/p>\n<p><img decoding=\"async\" class=\"alignnone wp-image-5879 size-full\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2812-2.jpg\" alt=\"\" width=\"1280\" height=\"960\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2812-2.jpg 1280w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2812-2-600x450.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2812-2-300x225.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2812-2-768x576.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2812-2-1024x768.jpg 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2812-2-400x300.jpg 400w\" sizes=\"(max-width: 1280px) 100vw, 1280px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">\u05d4\u05e1\u05e0\u05d0\u05d8\u05d5\u05e8 \u05d0\u05d3 \u05de\u05d0\u05e8\u05e7\u05d9 \u05de\u05de\u05e1\u05e6&#039;\u05d5\u05e1\u05d8\u05e1 (\u05d1\u05d3\u05d5\u05e7 \u05d0\u05d5\u05ea\u05d5 \u05d1\u05d9\u05e6\u05d9\u05e2!) \u05e0\u05e9\u05d0 \u05d0\u05ea \u05d4\u05e0\u05d0\u05d5\u05dd \u05d4\u05de\u05e8\u05db\u05d6\u05d9 \u05d1\u05ea\u05d3\u05e8\u05d5\u05da. \u05db\u05d7\u05d1\u05e8\u05ea \u05e4\u05d0\u05e0\u05dc, \u05d0\u05de\u05d9\u05dc\u05d9 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\u05d0\u05d1\u05e8\u05d4\u05de\u05e1, \u05e0\u05e9\u05d9\u05d0 \u05e7\u05d5\u05d0\u05dc\u05d9\u05e6\u05d9\u05d9\u05ea \u05d4\u05e8\u05e4\u05d5\u05d0\u05d4 \u05d4\u05d0\u05d9\u05e9\u05d9\u05ea, \u05e1\u05d9\u05d9\u05dd \u05d0\u05ea \u05d4\u05e9\u05d9\u05d7\u05d4 \u05d1\u05e9\u05d0\u05dc\u05d5\u05ea \u05d5\u05ea\u05e9\u05d5\u05d1\u05d5\u05ea \u05e2\u05e8\u05d5\u05ea<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u05d0\u05d7\u05e8 \u05d4\u05e6\u05d4\u05e8\u05d9\u05d9\u05dd, \u05d0\u05de\u05d9\u05dc\u05d9 \u05d4\u05de\u05e9\u05d9\u05db\u05d4 \u05d1\u05e9\u05d9\u05d7\u05d4 \u05e2\u05dd \u05e6\u05d5\u05d5\u05ea \u05d5\u05e2\u05d3\u05ea \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea, \u05d4\u05d7\u05d9\u05e0\u05d5\u05da, \u05d4\u05e2\u05d1\u05d5\u05d3\u05d4 \u05d5\u05d4\u05e4\u05e0\u05e1\u05d9\u05d4 \u05e9\u05dc \u05d4\u05e1\u05e0\u05d0\u05d8 (HELP), \u05e9\u05dd \u05d4\u05dd \u05d3\u05e0\u05d5 \u05d1\u05de\u05d3\u05d9\u05e0\u05d9\u05d5\u05ea \u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d4\u05e6\u05d9\u05d1\u05d5\u05e8 \u05ea\u05d5\u05da \u05d4\u05ea\u05de\u05e7\u05d3\u05d5\u05ea \u05d1-FDA. \u05dc\u05d0\u05d7\u05e8 \u05de\u05db\u05df \u05d4\u05d9\u05d0 \u05e0\u05e4\u05d2\u05e9\u05d4 \u05e2\u05dd \u05d4\u05e1\u05e0\u05d0\u05d8\u05d5\u05e8 \u05d1\u05d5\u05d1 \u05e7\u05d9\u05d9\u05e1\u05d9 \u05de\u05de\u05d3\u05d9\u05e0\u05ea \u05d1\u05d9\u05ea\u05d4 \u05e4\u05e0\u05e1\u05d9\u05dc\u05d1\u05e0\u05d9\u05d4 \u05d5\u05e2\u05dd \u05e6\u05d5\u05d5\u05ea \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05e9\u05dc\u05d5. <\/span><\/p>\n<p><img decoding=\"async\" class=\"alignnone wp-image-5880 size-full\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2811-2.jpg\" alt=\"\" width=\"1280\" height=\"960\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2811-2.jpg 1280w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2811-2-600x450.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2811-2-300x225.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2811-2-768x576.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2811-2-1024x768.jpg 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2811-2-400x300.jpg 400w\" sizes=\"(max-width: 1280px) 100vw, 1280px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">\u05d0\u05de\u05d9\u05dc\u05d9 \u05de\u05e7\u05d5\u05d5\u05d4 \u05e9\u05d4\u05d6\u05de\u05df \u05e9\u05dc\u05d4 \u05e2\u05dc \u05d4\u05d2\u05d1\u05e2\u05d4 \u05d4\u05e2\u05e0\u05d9\u05e7 \u05e4\u05e0\u05d9\u05dd \u05d0\u05e0\u05d5\u05e9\u05d9\u05d5\u05ea \u05dc\u05d4\u05d1\u05d8\u05d7\u05d4 \u05e9\u05dc \u05e8\u05e4\u05d5\u05d0\u05d4 \u05de\u05d5\u05ea\u05d0\u05de\u05ea \u05d0\u05d9\u05e9\u05d9\u05ea \u05d5\u05dc\u05d4\u05d6\u05d3\u05de\u05e0\u05d5\u05ea \u05d4\u05de\u05d3\u05d4\u05d9\u05de\u05d4 \u05e9\u05dc\u05e4\u05e0\u05d9\u05e0\u05d5. \u05d1\u05e8\u05de\u05d4 \u05d4\u05d0\u05d9\u05e9\u05d9\u05ea, \u05d6\u05d4 \u05d4\u05d9\u05d4 \u05d9\u05d5\u05dd \u05de\u05d0\u05d9\u05e8 \u05e2\u05d9\u05e0\u05d9\u05d9\u05dd - \u05d4\u05e7\u05d5\u05e8\u05e1 \u05d4\u05de\u05d4\u05d9\u05e8 \u05d4\u05d0\u05d5\u05dc\u05d8\u05d9\u05de\u05d8\u05d9\u05d1\u05d9 \u05d1\u05de\u05d3\u05d9\u05e0\u05d9\u05d5\u05ea \u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d4\u05e6\u05d9\u05d1\u05d5\u05e8 - \u05d5\u05d4\u05d6\u05d3\u05de\u05e0\u05d5\u05ea \u05e9\u05dc\u05d0 \u05d9\u05e1\u05d5\u05dc\u05d0 \u05d1\u05e4\u05d6 \u05dc\u05e9\u05ea\u05e3 \u05d0\u05ea \u05d4\u05e6\u05e2\u05d3\u05d9\u05dd \u05d4\u05de\u05d3\u05d4\u05d9\u05de\u05d9\u05dd \u05e9\u05e2\u05d5\u05e9\u05d4 EE \u05db\u05d4\u05ea\u05d2\u05dc\u05de\u05d5\u05ea \u05d4\u05d0\u05d5\u05dc\u05d8\u05d9\u05de\u05d8\u05d9\u05d1\u05d9\u05ea \u05e9\u05dc \u05e8\u05e4\u05d5\u05d0\u05d4 \u05de\u05d5\u05ea\u05d0\u05de\u05ea \u05d0\u05d9\u05e9\u05d9\u05ea \u05d1\u05e4\u05e2\u05d5\u05dc\u05d4. <\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Ms Kramer-Golinkoff goes to Washington! Waving hello to the White House she visited a few times last year, Emily headed to the Hill last week to lobby Senators, their staff and other policymakers on the urgent, unmet needs in personalized medicine for those with rare diseases like Cystic Fibrosis. Emily started her day in the&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/he\/personalized-medicine-coalition-congressional-briefing-lobbying\/\" class=\"excerpt-read-more\">\u05e7\u05e8\u05d0 \u05e2\u05d5\u05d3<\/a><\/p>","protected":false},"author":750,"featured_media":5880,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-5874","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_2811-2.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/posts\/5874","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/users\/750"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/comments?post=5874"}],"version-history":[{"count":2,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/posts\/5874\/revisions"}],"predecessor-version":[{"id":5882,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/posts\/5874\/revisions\/5882"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/media\/5880"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/media?parent=5874"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/categories?post=5874"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/tags?post=5874"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}