{"id":13765,"date":"2019-11-01T07:00:05","date_gmt":"2019-11-01T11:00:05","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13765"},"modified":"2019-11-01T07:00:05","modified_gmt":"2019-11-01T11:00:05","slug":"ee-holds-4th-annual-cocktail-reception-at-nacfc-in-nashville","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/he\/ee-holds-4th-annual-cocktail-reception-at-nacfc-in-nashville\/","title":{"rendered":"EE \u05de\u05e7\u05d9\u05d9\u05dd \u05e7\u05d1\u05dc\u05ea \u05e7\u05d5\u05e7\u05d8\u05d9\u05d9\u05dc\u05d9\u05dd \u05e9\u05e0\u05ea\u05d9\u05ea \u05e8\u05d1\u05d9\u05e2\u05d9\u05ea \u05d1-NACFC \u05d1\u05e0\u05d0\u05e9\u05d5\u05d5\u05d9\u05dc"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">\u05e4\u05de\u05dc\u05d9\u05d9\u05ea \u05d0\u05de\u05d9\u05dc\u05d9 (EE) \u05de\u05ea\u05e8\u05d2\u05e9\u05ea \u05dc\u05d0\u05e8\u05d7 \u05d0\u05ea \u05e7\u05d1\u05dc\u05ea \u05d4\u05e7\u05d5\u05e7\u05d8\u05d9\u05d9\u05dc\u05d9\u05dd \u05d4\u05e9\u05e0\u05ea\u05d9\u05ea \u05d4\u05e8\u05d1\u05d9\u05e2\u05d9\u05ea \u05e9\u05dc\u05d4, \u05d1\u05d4\u05d6\u05de\u05e0\u05d4 \u05d1\u05dc\u05d1\u05d3, \u05d1\u05d5\u05d5\u05e2\u05d9\u05d3\u05ea \u05e1\u05d9\u05e1\u05d8\u05d9\u05e7 \u05e4\u05d9\u05d1\u05e8\u05d5\u05d6\u05d9\u05e1 \u05d1\u05e6\u05e4\u05d5\u05df \u05d0\u05de\u05e8\u05d9\u05e7\u05d4 (NACFC) \u05d1-1 \u05d1\u05e0\u05d5\u05d1\u05de\u05d1\u05e8 2019. \u05d0\u05de\u05d9\u05dc\u05d9 \u05d5\u05de\u05e9\u05e4\u05d7\u05ea\u05d4 \u05d9\u05d5\u05d1\u05d9\u05dc\u05d5 \u05d0\u05ea \u05d4\u05d0\u05d9\u05e8\u05d5\u05e2 \u05d4\u05d6\u05d4 \u05d9\u05d7\u05d3 \u05e2\u05dd \u05de\u05e0\u05d4\u05d9\u05d2\u05d5\u05ea \u05de\u05e8\u05db\u05d6\u05d9\u05ea \u05d1-EE, \u05db\u05d5\u05dc\u05dc \u05d4\u05de\u05e0\u05d4\u05dc \u05d4\u05de\u05d3\u05e2\u05d9, \u05e4\u05d9\u05d8 \u05d4\u05d2\u05d9, \u05d3\u05d5\u05e7\u05d8\u05d5\u05e8\u05d8. \u05d4\u05e9\u05e0\u05d4, EE \u05de\u05e6\u05e4\u05d4 \u05d1\u05de\u05d9\u05d5\u05d7\u05d3 \u05dc\u05d0\u05e8\u05d7 \u05d1\u05e0\u05d0\u05e9\u05d5\u05d5\u05d9\u05dc \u05d4\u05d0\u05d9\u05d9\u05e7\u05d5\u05e0\u05d9\u05ea, TN!\u00a0<\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-full wp-image-13771 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner.jpg\" alt=\"\" width=\"900\" height=\"563\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner-300x188.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner-768x480.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner-600x375.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">\u05e7\u05e8\u05df \u05e1\u05d9\u05e1\u05d8\u05d9\u05e7 \u05e4\u05d9\u05d1\u05e8\u05d5\u05d6\u05d9\u05e1 (CFF) \u05de\u05e7\u05d9\u05d9\u05de\u05ea \u05d4\u05e9\u05e0\u05d4 \u05d0\u05ea NACFC \u05d1\u05de\u05e8\u05db\u05d6 \u05d4\u05e2\u05d9\u05e8 \u05d4\u05de\u05d5\u05d6\u05d9\u05e7\u05d4 \u05e9\u05dc \u05e0\u05d0\u05e9\u05d5\u05d5\u05d9\u05dc \u05de\u05d4-31 \u05d1\u05d0\u05d5\u05e7\u05d8\u05d5\u05d1\u05e8 \u05e2\u05d3 \u05d4-2 \u05d1\u05e0\u05d5\u05d1\u05de\u05d1\u05e8 2019. \u05d4\u05db\u05e0\u05e1 \u05d4\u05e9\u05e0\u05ea\u05d9 \u05de\u05d0\u05d2\u05d3 \u05dc\u05de\u05e2\u05dc\u05d4 \u05de-5,000 \u05e7\u05dc\u05d9\u05e0\u05d0\u05d9 \u05e1\u05d9\u05e1\u05d8\u05d9\u05e7 \u05e4\u05d9\u05d1\u05e8\u05d5\u05d6\u05d9\u05e1 (CF), \u05de\u05d3\u05e2\u05e0\u05d9\u05dd, \u05d7\u05d5\u05e7\u05e8\u05d9\u05dd \u05d5\u05de\u05d8\u05e4\u05dc\u05d9\u05dd \u05d1\u05d7\u05dc\u05dc \u05d0\u05d7\u05d3 \u05dc\u05d3\u05d5\u05df \u05d1\u05de\u05d7\u05e7\u05e8, \u05d8\u05d9\u05e4\u05d5\u05dc \u05d5\u05e4\u05d9\u05ea\u05d5\u05d7 \u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05d4\u05e2\u05d3\u05db\u05e0\u05d9\u05d9\u05dd \u05d1\u05d9\u05d5\u05ea\u05e8 \u05e9\u05dc CF. \u05d4\u05ea\u05e7\u05d5\u05d5\u05d4 \u05d4\u05d9\u05d0 \u05dc\u05d4\u05d7\u05dc\u05d9\u05e3 \u05e8\u05e2\u05d9\u05d5\u05e0\u05d5\u05ea \u05e9\u05d9\u05e9\u05e4\u05e8\u05d5 \u05d0\u05ea \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d5\u05d4\u05e8\u05d5\u05d5\u05d7\u05d4 \u05e9\u05dc \u05d0\u05e0\u05e9\u05d9\u05dd \u05e2\u05dd CF. EE \u05de\u05d5\u05d3\u05d4 \u05de\u05d0\u05d5\u05d3 \u05dc-CFF \u05e2\u05dc \u05d4\u05d4\u05d6\u05d3\u05de\u05e0\u05d5\u05ea \u05dc\u05d0\u05e8\u05d7 \u05d0\u05ea \u05e7\u05d1\u05dc\u05ea \u05d4\u05e4\u05e0\u05d9\u05dd \u05d6\u05d5 \u05d4\u05e9\u05e0\u05d4 \u05d4\u05e8\u05d1\u05d9\u05e2\u05d9\u05ea \u05d1\u05e8\u05e6\u05d9\u05e4\u05d5\u05ea.<\/span><\/p>\n<blockquote>\n<p style=\"text-align: center;\"><strong>\u05d4\u05e8\u05dc\u05d5\u05d5\u05e0\u05d8\u05d9\u05d5\u05ea \u05d5\u05d4\u05d3\u05d7\u05d9\u05e4\u05d5\u05ea \u05e9\u05dc \u05d4\u05de\u05e9\u05d9\u05de\u05d4 \u05d4\u05de\u05de\u05d5\u05e7\u05d3\u05ea \u05d1\u05dc\u05d9\u05d9\u05d6\u05e8 \u05e9\u05dc EE \u05dc\u05d4\u05d0\u05d9\u05e5 \u05e4\u05e8\u05d9\u05e6\u05d5\u05ea \u05d3\u05e8\u05da \u05d5\u05ea\u05e8\u05d5\u05e4\u05d4 \u05dc\u05de\u05d5\u05d8\u05e6\u05d9\u05d5\u05ea \u05e9\u05d8\u05d5\u05d9\u05d5\u05ea \u05e9\u05dc CF \u05d4\u05d9\u05d0 \u05e7\u05e8\u05d9\u05d8\u05d9\u05ea \u05d9\u05d5\u05ea\u05e8 \u05de\u05d0\u05d9 \u05e4\u05e2\u05dd.\u00a0<\/strong><\/p>\n<\/blockquote>\n<p><span style=\"font-weight: 400;\">\u05e7\u05d1\u05dc\u05ea \u05d4\u05e4\u05e0\u05d9\u05dd \u05e9\u05dc EE \u05d4\u05e9\u05e0\u05d4 \u05de\u05e4\u05d2\u05d9\u05e9\u05d4 \u05dc\u05de\u05e2\u05dc\u05d4 \u05de-85 \u05d7\u05d5\u05e7\u05e8\u05d9 CF, \u05de\u05d3\u05e2\u05e0\u05d9\u05dd, \u05de\u05e9\u05e4\u05d7\u05d5\u05ea \u05d5\u05e0\u05e6\u05d9\u05d2\u05d9\u05dd \u05de\u05d7\u05d1\u05e8\u05d5\u05ea \u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05d5\u05d1\u05d9\u05d5\u05d8\u05db\u05e0\u05d5\u05dc\u05d5\u05d2\u05d9\u05d4. \u05de\u05d8\u05e8\u05ea \u05d4\u05d0\u05d9\u05e8\u05d5\u05e2 \u05d4\u05d9\u05d0 \u05dc\u05d7\u05d2\u05d5\u05d2 \u05d0\u05ea \u05d4\u05d4\u05d9\u05e9\u05d2\u05d9\u05dd \u05e9\u05dc EE \u05e2\u05d3 \u05db\u05d4, \u05dc\u05d4\u05db\u05d9\u05e8 \u05d5\u05dc\u05d4\u05d5\u05e7\u05d9\u05e8 \u05d0\u05ea \u05d4\u05e7\u05d4\u05d9\u05dc\u05d4 \u05d4\u05de\u05d3\u05e2\u05d9\u05ea \u05d4\u05de\u05e6\u05d8\u05d9\u05d9\u05e0\u05ea, \u05dc\u05d8\u05e4\u05d7 \u05e7\u05e9\u05e8\u05d9\u05dd \u05d7\u05d3\u05e9\u05d9\u05dd \u05d5\u05d7\u05d9\u05dc\u05d5\u05e4\u05d9 \u05e8\u05e2\u05d9\u05d5\u05e0\u05d5\u05ea, \u05d5\u05d1\u05e1\u05d5\u05e4\u05d5 \u05e9\u05dc \u05d3\u05d1\u05e8, \u05dc\u05e2\u05d5\u05d3\u05d3 \u05d4\u05ea\u05e7\u05d3\u05de\u05d5\u05ea \u05de\u05d4\u05d9\u05e8\u05d4 \u05e9\u05dc \u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05d8\u05d9\u05e4\u05d5\u05dc\u05d9\u05d5\u05ea \u05d7\u05d3\u05e9\u05d5\u05ea \u05dc\u05de\u05d5\u05d8\u05e6\u05d9\u05d5\u05ea \u05e9\u05d8\u05d5\u05d9\u05d5\u05ea \u05e9\u05dc CF.<\/span><\/p>\n<p><img decoding=\"async\" class=\"size-full wp-image-13772 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018.jpg\" alt=\"\" width=\"900\" height=\"437\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018-300x146.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018-768x373.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018-600x291.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">\u05e7\u05d1\u05dc\u05ea \u05d4\u05e4\u05e0\u05d9\u05dd \u05de\u05ea\u05e8\u05d7\u05e9\u05ea \u05d1\u05e8\u05d2\u05e2 \u05d0\u05d9\u05e0\u05d8\u05d2\u05e8\u05dc\u05d9 \u05d1\u05de\u05d9\u05d5\u05d7\u05d3 \u05e2\u05d1\u05d5\u05e8 \u05e7\u05d4\u05d9\u05dc\u05ea \u05d4-CF \u05e2\u05dd <\/span><a href=\"https:\/\/www.fda.gov\/news-events\/press-announcements\/fda-approves-new-breakthrough-therapy-cystic-fibrosis\"><span style=\"font-weight: 400;\">\u05d4\u05d0\u05d9\u05e9\u05d5\u05e8 \u05d4\u05d0\u05d7\u05e8\u05d5\u05df \u05e9\u05dc \u05d4-FDA \u05dc\u05d8\u05d9\u05e4\u05d5\u05dc \u05de\u05e9\u05d5\u05dc\u05d1 \u05de\u05e9\u05d5\u05dc\u05e9, Trikafta, \u05e2\u05d1\u05d5\u05e8 90% \u05e9\u05dc \u05e7\u05d4\u05d9\u05dc\u05ea CF<\/span><span style=\"font-weight: 400;\"> \u05d8<\/span><\/a><span style=\"font-weight: 400;\">\u05db\u05d5\u05d1\u05e2 \u05d7\u05d5\u05dc\u05e7 \u05dc\u05e4\u05d7\u05d5\u05ea \u05e2\u05d5\u05ea\u05e7 \u05d0\u05d7\u05d3 \u05e9\u05dc \u05d4\u05de\u05d5\u05d8\u05e6\u05d9\u05d4 \u05d4\u05d2\u05e0\u05d8\u05d9\u05ea CF \u05d4\u05e0\u05e4\u05d5\u05e6\u05d4 \u05d1\u05d9\u05d5\u05ea\u05e8, F508del. \u05d0\u05dc\u05d4 \u05e2\u05dd \u05de\u05d5\u05d8\u05e6\u05d9\u05d5\u05ea \u05e9\u05d8\u05d5\u05d9\u05d5\u05ea \u05e9\u05dc CF \u05d4\u05dd \u05d7\u05dc\u05e7 \u05de\u05d4-10% \u05d4\u05de\u05d5\u05e8\u05d7\u05d1\u05ea \u05e9\u05d0\u05d9\u05e0\u05dd \u05e0\u05d4\u05e0\u05d9\u05dd \u05de\u05d4\u05d8\u05d9\u05e4\u05d5\u05dc \u05d4\u05d7\u05d3\u05e9 \u05d4\u05d6\u05d4. \u05d4\u05e8\u05dc\u05d5\u05d5\u05e0\u05d8\u05d9\u05d5\u05ea \u05d5\u05d4\u05d3\u05d7\u05d9\u05e4\u05d5\u05ea \u05e9\u05dc \u05d4\u05de\u05e9\u05d9\u05de\u05d4 \u05d4\u05de\u05de\u05d5\u05e7\u05d3\u05ea \u05d1\u05dc\u05d9\u05d9\u05d6\u05e8 \u05e9\u05dc EE \u05dc\u05d4\u05d0\u05d9\u05e5 \u05e4\u05e8\u05d9\u05e6\u05d5\u05ea \u05d3\u05e8\u05da \u05d5\u05ea\u05e8\u05d5\u05e4\u05d4 \u05dc\u05de\u05d5\u05d8\u05e6\u05d9\u05d5\u05ea \u05e9\u05d8\u05d5\u05d9\u05d5\u05ea \u05e9\u05dc CF \u05d4\u05d9\u05d0 \u05e7\u05e8\u05d9\u05d8\u05d9\u05ea \u05d9\u05d5\u05ea\u05e8 \u05de\u05d0\u05d9 \u05e4\u05e2\u05dd.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">EE \u05de\u05d5\u05d3\u05d4 \u05dc-CFF \u05e2\u05dc \u05d4\u05d4\u05d6\u05d3\u05de\u05e0\u05d5\u05ea \u05dc\u05d0\u05e8\u05d7 \u05d0\u05ea \u05e7\u05d1\u05dc\u05ea \u05d4\u05e4\u05e0\u05d9\u05dd \u05d4\u05d6\u05d5 \u05d6\u05d5 \u05d4\u05e9\u05e0\u05d4 \u05d4\u05e8\u05d1\u05d9\u05e2\u05d9\u05ea \u05d1-NACFC. \u05d5\u05de\u05e6\u05e4\u05d4 \u05dc\u05d0\u05d9\u05e0\u05d8\u05e8\u05d0\u05e7\u05e6\u05d9\u05d4 \u05e2\u05dd \u05e4\u05e8\u05e6\u05d5\u05e4\u05d9\u05dd \u05d7\u05d3\u05e9\u05d9\u05dd \u05d5\u05de\u05d5\u05db\u05e8\u05d9\u05dd \u05db\u05d0\u05d7\u05d3 \u05d1\u05e7\u05d1\u05dc\u05ea \u05d4\u05e4\u05e0\u05d9\u05dd \u05e9\u05dc \u05d4\u05e9\u05e0\u05d4. <\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Emily\u2019s Entourage (EE) is excited to be hosting its 4th Annual, invitation-only Cocktail Reception at the North American Cystic Fibrosis Conference (NACFC) on November 1, 2019. Emily and her family will be leading this event along with key EE leadership, including Scientific Director, Pete Haggie, PhD. This year, EE is particularly looking forward to hosting&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/he\/ee-holds-4th-annual-cocktail-reception-at-nacfc-in-nashville\/\" class=\"excerpt-read-more\">\u05e7\u05e8\u05d0 \u05e2\u05d5\u05d3<\/a><\/p>","protected":false},"author":1704,"featured_media":13771,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-13765","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/posts\/13765","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/comments?post=13765"}],"version-history":[{"count":3,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/posts\/13765\/revisions"}],"predecessor-version":[{"id":13774,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/posts\/13765\/revisions\/13774"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/media\/13771"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/media?parent=13765"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/categories?post=13765"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/he\/wp-json\/wp\/v2\/tags?post=13765"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}