{"id":447,"date":"2012-02-02T08:46:41","date_gmt":"2012-02-02T15:46:41","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=447"},"modified":"2023-12-19T01:30:43","modified_gmt":"2023-12-19T06:30:43","slug":"exciting-new-cf-drug-approval","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/fr_ca\/exciting-new-cf-drug-approval\/","title":{"rendered":"Nouvelle autorisation de mise sur le march\u00e9 d'un m\u00e9dicament contre la fibrose kystique !"},"content":{"rendered":"

Bonjour \u00e0 tous,<\/p>\n

Nous avons une NOUVELLE \u00c9NORME \u00e0 partager avec vous et tous les membres de l'Entourage d'Emily sont extr\u00eamement enthousiastes. En d\u00e9but de semaine, il a \u00e9t\u00e9 annonc\u00e9 que la FDA avait approuv\u00e9 un nouveau m\u00e9dicament, le Kalydeco, qui est le TOUT PREMIER m\u00e9dicament \u00e0 corriger le probl\u00e8me g\u00e9n\u00e9tique sous-jacent de la fibrose kystique (FK). Toutefois, ce m\u00e9dicament n'aidera que 4% des personnes atteintes de FK qui pr\u00e9sentent une certaine mutation g\u00e9n\u00e9tique (G551D). Malheureusement, les 96% restants, dont Emily, attendent toujours le traitement qui leur sauvera la vie.<\/p>\n

Cette \u00e9norme nouvelle nous rappelle pourquoi tous nos efforts de collecte de fonds sont SI importants. L'argent que nous collectons permet de financer des recherches qui changent la vie, comme celle-ci. Cette d\u00e9couverte \u00e9tonnante nous montre que nous sommes si pr\u00e8s du but, mais que nous n'y sommes pas encore. Nous devons continuer \u00e0 pousser et \u00e0 collecter des fonds pour qu'Emily et toutes les autres personnes atteintes de FK puissent \u00e9galement b\u00e9n\u00e9ficier d'un traitement qui changera leur vie. Vous pouvez nous aider en faisant un don et en continuant \u00e0 diffuser le message de l'Entourage d'Emily.<\/p>\n

De la part de toute l'\u00e9quipe d'Emily's Entourage, nous vous remercions pour votre soutien continu !<\/p>\n

-L'entourage d'Emily<\/p>\n

 <\/p>\n

Lire le communiqu\u00e9 de presse de la FCE : https:\/\/www.cff.org\/News\/News-Archive\/2012\/FDA-Approves-Kalydeco-(VX-770)-%E2%80%94-First-Drug-That-Targets-the-Underlying-Cause-of-Cystic-Fibrosis\/<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Bonjour \u00e0 tous, Nous avons une NOUVELLE \u00c9NORME \u00e0 partager avec vous et tous les membres de l'Entourage d'Emily sont extr\u00eamement enthousiastes \u00e0 ce sujet. En d\u00e9but de semaine, on a annonc\u00e9 que la FDA avait approuv\u00e9 un nouveau m\u00e9dicament, le Kalydeco, qui est le TOUT PREMIER m\u00e9dicament \u00e0 corriger le probl\u00e8me g\u00e9n\u00e9tique sous-jacent de la fibrose kystique (FK). Cependant, le m\u00e9dicament... <\/p>\n

<\/div>\n

Lire la suite<\/a><\/p>","protected":false},"author":58,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[6],"tags":[],"class_list":["post-447","post","type-post","status-publish","format-standard","hentry","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/posts\/447","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/comments?post=447"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/posts\/447\/revisions"}],"predecessor-version":[{"id":20229,"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/posts\/447\/revisions\/20229"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/media?parent=447"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/categories?post=447"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/fr_ca\/wp-json\/wp\/v2\/tags?post=447"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}