{"id":26140,"date":"2026-04-30T09:00:40","date_gmt":"2026-04-30T13:00:40","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=26140"},"modified":"2026-04-30T16:48:01","modified_gmt":"2026-04-30T20:48:01","slug":"cf-unseen-a-new-perspective-for-cf-awareness-month","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/fr_ca\/cf-unseen-a-new-perspective-for-cf-awareness-month\/","title":{"rendered":"CF, Unseen: A New Perspective for CF Awareness Month"},"content":{"rendered":"

Cystic Fibrosis Awareness (CFA) Month begins today\u2014and at Emily\u2019s Entourage (EE), we\u2019re inviting you to look closer.<\/span><\/p>\n

Because when it comes to cystic fibrosis (CF), <\/span>what you see is only part of the story.<\/b><\/p>\n

\"\"<\/p>\n

CF is an invisible disease. The realities that shape life with CF\u2014daily treatments, the physical toll, the mental load, the uncertainty, the fear\u2014are often hidden from view. <\/span>But just because these experiences aren\u2019t always visible doesn\u2019t make them any less real.<\/b><\/p>\n

While the development of lifesaving mutation-targeted therapies has transformed life for nearly 90% of people with CF, the final 10% that don\u2019t benefit from these therapies is still waiting. Still living on borrowed time. Still contending with the same devastating disease that CF has always been. Still working their hardest to hold onto hope.<\/span><\/p>\n

Each year, during CF Awareness Month in May, we rally around our biggest and boldest goal: to <\/span>#CrossOutCF\u2014for 100% of the CF community, once and for all.<\/b><\/p>\n

This month, we\u2019re reimagining what that means.<\/span><\/p>\n

We\u2019re crossing out assumptions.<\/span>
\n<\/span>We\u2019re crossing out surface-level perceptions.<\/span>
\n<\/span>We\u2019re crossing out what the world thinks it knows about CF\u2014<\/span>
\n<\/span>and revealing what lies behind the scenes.\u00a0<\/span><\/p>\n

You might see a smile.<\/span>
\n<\/span>But you don\u2019t see the four hours of daily treatments behind it.<\/span><\/p>\n

You might see someone living what looks like their best life.<\/span>
\n<\/span>But you don\u2019t see the hard work and perseverance it takes just to show up.<\/span><\/p>\n

You might see a breakthrough headline.<\/span>
\n<\/span>But you don\u2019t see the years of research that made it possible.<\/span><\/p>\n

We\u2019re pulling back the curtain\u2014sharing the raw, human realities of life with CF and elevating voices that too often go unheard.\u00a0<\/span><\/p>\n

A Month of Real Stories, Real Voices, and Real Life with CF<\/b><\/h3>\n

Throughout May, we\u2019ll spotlight the experiences that shape everyday life with CF to reveal what often goes unseen:<\/span><\/p>\n

Stories from individuals navigating CF in under-resourced parts of the world.<\/span>
\n<\/span>Stories from those living with complex comorbidities that complicate an already challenging disease.<\/span>
\n<\/span>Stories from people who have undergone transplant\u2014twice.<\/span>
\n<\/span>Stories from the final 10%, who continue to hold onto hope while science works to catch up.<\/span><\/p>\n

These voices reflect the depth, resilience, and diversity of the CF community\u2014and remind us that while CF may be invisible, its impact is anything but.<\/span><\/p>\n

Comment s'impliquer<\/b><\/h3>\n

This month is about awareness, connection, and community. Every story shared, every perspective amplified, and every conversation sparked helps reveal the realities of life with CF\u2014and brings us closer <\/span>to a future where there are livesaving therapies for 100% of the CF community and no one is left behind.<\/b><\/p>\n

\"\"<\/p>\n