{"id":598,"date":"2012-05-07T19:56:51","date_gmt":"2012-05-08T02:56:51","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=598"},"modified":"2023-12-20T04:28:01","modified_gmt":"2023-12-20T09:28:01","slug":"may-is-cf-awareness-month","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/es\/may-is-cf-awareness-month\/","title":{"rendered":"\u00a1Mayo es el mes de concientizaci\u00f3n sobre la FQ!"},"content":{"rendered":"<div dir=\"ltr\">Hola todos,<\/div>\n<p>&nbsp;<\/p>\n<p dir=\"ltr\">\u00a1Feliz Mayo! Este es un mes especialmente importante porque mayo es el Mes Nacional de Concientizaci\u00f3n sobre la Fibrosis Qu\u00edstica. La FQ solo afecta a 30.000 personas en los EE. UU., Lo que significa que muchas personas ni siquiera han o\u00eddo hablar de la FQ antes. Este mes es una oportunidad para educar a nuestros amigos y sobre la FQ: qu\u00e9 es, qu\u00e9 implica, cu\u00e1les son las implicaciones a largo plazo y por qu\u00e9 necesitamos una cura lo antes posible.<\/p>\n<p>En un esfuerzo por aumentar la conciencia y el entusiasmo, publicamos datos, historias, noticias, inspiraci\u00f3n y fotos de la FQ a diario en Twitter durante todo el mes. \u00a1S\u00edganos en @ EmsEntourage4CF para unirse a la conversaci\u00f3n!<\/p>\n<p dir=\"ltr\">Adem\u00e1s, le pedimos que nos ayude a difundir la FQ. Aqu\u00ed hay algunas formas en las que puede ayudar:<\/p>\n<div dir=\"ltr\">\n<ul>\n<li><strong>Haz una donaci\u00f3n a Emily&#039;s Entourage<\/strong><\/li>\n<ul>\n<li><a href=\"https:\/\/www.paypal.com\/us\/cgi-bin\/webscr?cmd=_flow&amp;SESSION=2rhVuhw4_UYB5Pi9YMsQW2d83RQwBeRc486SrKww15gj0JJV1oIPg7VmbX8&amp;dispatch=5885d80a13c0db1f8e263663d3faee8d195a86f1d217942f7415cf1b2a661693\">\u00a1Done ahora!<\/a><\/li>\n<\/ul>\n<li><strong>Compra una camiseta de Emily&#039;s Entourage<\/strong><\/li>\n<ul>\n<li><a href=\"https:\/\/www.emilysentourage.org\/es\/buy-an-ee-tshirt\/\">\u00a1Compra una camiseta!<\/a><\/li>\n<\/ul>\n<li><strong>Organice una recaudaci\u00f3n de fondos para EE en su comunidad o en su universidad<\/strong><\/li>\n<ul>\n<li><a href=\"https:\/\/www.emilysentourage.org\/es\/contact\/\">\u00a1Env\u00edanos un mensaje con tu idea!<\/a><\/li>\n<\/ul>\n<li><strong>Publique un mensaje en Facebook o Twitter para crear conciencia sobre la FQ<\/strong><\/li>\n<ul>\n<li>Ejemplo de publicaci\u00f3n de Facebook:<\/li>\n<ul>\n<ul>\n<li>Hay 30.000 personas con fibrosis qu\u00edstica en los Estados Unidos y 10 millones de portadores del gen de la FQ. En honor al Mes de Concientizaci\u00f3n sobre la Fibrosis Qu\u00edstica en mayo, vea lo que puede hacer para ayudar a marcar la diferencia en la lucha contra la FQ.<a title=\"http:\/\/bit.ly\/EmsEnt\" href=\"https:\/\/www.emilysentourage.org\/es\/\" rel=\"nofollow noopener\" target=\"_blank\" url=\"http:\/\/bit.ly\/EmsEnt\">http:\/\/bit.ly\/EmsEnt<\/a><\/li>\n<\/ul>\n<\/ul>\n<li>Ejemplo de publicaci\u00f3n de Twitter:<\/li>\n<ul>\n<ul>\n<li>Esperanza de vida promedio en EE. UU.: 80 a\u00f1os. Esperanza de vida promedio para personas con CF: mediados de los 30. NECESITAMOS UNA CURACI\u00d3N. STAT. <a href=\"https:\/\/www.emilysentourage.org\/es\/\">http:\/\/bit.ly\/E<wbr>msEnt <\/wbr><\/a>#CFAconcienciaMes<\/li>\n<li>\u00a1Mayo es #CFAwarenessMonth! \u00bfSab\u00eda que 10 millones de estadounidenses son portadores del gen #CysticFibrosis?\u00a0<a title=\"http:\/\/bit.ly\/EmsEnt\" href=\"https:\/\/www.emilysentourage.org\/es\/\" rel=\"nofollow noopener\" target=\"_blank\" url=\"http:\/\/bit.ly\/EmsEnt\">http:\/\/bit.ly\/EmsEnt<\/a><\/li>\n<li>A pesar de los avances en el cribado gen\u00e9tico, 1000 nuevos casos de <a title=\"# Fibrosis qu\u00edstica\" href=\"https:\/\/twitter.com\/#%21\/search\/%23CysticFibrosis\" data-query-source=\"hashtag_click\"><s>#<\/s><strong>Fibrosis qu\u00edstica<\/strong><\/a>\u00a0se diagnostican cada a\u00f1o <a title=\"http:\/\/bit.ly\/EmsEnt\" href=\"https:\/\/www.emilysentourage.org\/es\/\" rel=\"nofollow noopener\" target=\"_blank\" url=\"http:\/\/bit.ly\/EmsEnt\">http:\/\/bit.ly\/EmsEnt<\/a>\u00a0#CFAconcienciaMes<\/li>\n<\/ul>\n<\/ul>\n<\/ul>\n<\/ul>\n<p>Como siempre, \u00a1gracias por su incre\u00edble apoyo! Al difundir la conciencia, podemos marcar la diferencia en la lucha contra la FQ.<\/p>\n<div dir=\"ltr\">-EE<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Hi all, &nbsp; Happy May! This is an especially important month because May is National Cystic Fibrosis Awareness Month. CF only affects 30,000 people in the US, which means that many people haven&#8217;t even heard of CF before. This month is an opportunity to educate our friends and about CF- what it is, what it&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/es\/may-is-cf-awareness-month\/\" class=\"excerpt-read-more\">Lee mas<\/a><\/p>","protected":false},"author":58,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[6],"tags":[],"class_list":["post-598","post","type-post","status-publish","format-standard","hentry","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/598","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/comments?post=598"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/598\/revisions"}],"predecessor-version":[{"id":20430,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/598\/revisions\/20430"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/media?parent=598"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/categories?post=598"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/tags?post=598"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}