{"id":5903,"date":"2017-04-14T00:16:38","date_gmt":"2017-04-14T04:16:38","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=5903"},"modified":"2020-01-08T20:28:27","modified_gmt":"2020-01-09T01:28:27","slug":"a-glimpse-into-life-with-chronic-illness","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/es\/a-glimpse-into-life-with-chronic-illness\/","title":{"rendered":"Un vistazo a la vida con enfermedades cr\u00f3nicas"},"content":{"rendered":"

\u00bfAlguna vez se pregunt\u00f3 qu\u00e9 se siente tener una enfermedad cr\u00f3nica grave como la fibrosis qu\u00edstica?<\/p>\n

\"\"

Descanso en el hospital<\/p><\/div>\n

La "Teor\u00eda de la cuchara" de Christine Miserandino es una especie de leyenda en el mundo de las enfermedades cr\u00f3nicas por dar a las personas sanas un vistazo a la vida con enfermedades (tanto es as\u00ed que las personas con enfermedades cr\u00f3nicas a menudo se refieren cari\u00f1osamente a s\u00ed mismas como "cucharas"). Christine, una mujer joven con lupus, se centra magistralmente en una gran diferencia entre estar enfermo y estar saludable: tener que pensar cuidadosamente y tomar decisiones dif\u00edciles sobre c\u00f3mo gastar su energ\u00eda cada d\u00eda.-<\/span>algo que el resto de nosotros simplemente damos por sentado.<\/p>\n

Estas decisiones a menudo se reducen a cosas tan b\u00e1sicas como elegir entre lavar la ropa o preparar la cena, ir de compras o ir al gimnasio. Con una reserva limitada de energ\u00eda, Emily y otras personas como ella tienen que priorizar constantemente cuando se trata de sus gastos de energ\u00eda, y hay mucho en juego. Ir m\u00e1s all\u00e1 del l\u00edmite de Emily, por ejemplo, puede tener consecuencias graves, como hemorragias pulmonares, inflamaci\u00f3n y un mayor riesgo de infecciones pulmonares.<\/p>\n

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Todo de cucharas<\/p><\/div>\n

M\u00e1s all\u00e1 de las p\u00edldoras y los tratamientos m\u00e9dicos, las citas con el m\u00e9dico y las hospitalizaciones, a menudo la parte m\u00e1s dif\u00edcil de la FQ para Emily a diario es el impacto en su energ\u00eda. Resulta que la energ\u00eda es un recurso precioso y muy finito. A menudo, sus ojos son grandes y sus ambiciones a\u00fan mayores, y su cuerpo simplemente no puede seguir el ritmo.<\/p>\n

\"\"

Tres hermanas so\u00f1olientas al final de un largo d\u00eda.<\/p><\/div>\n

As\u00ed que lea. Y la pr\u00f3xima vez que veas a Emily, preg\u00fantale cu\u00e1l es su n\u00famero de cucharas durante el d\u00eda. Estamos dispuestos a apostar que su respuesta le sorprender\u00e1 bastante.<\/p>\n

L\u00e9alo aqu\u00ed >> La teor\u00eda de la cuchara de Christine Miserandino<\/a><\/p>\n

\"\"

Conservar sus cucharas antes de un gran d\u00eda de citas y pruebas de ensayos cl\u00ednicos<\/p><\/div>","protected":false},"excerpt":{"rendered":"

Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind of legendary in the chronic illness world for giving healthy folks a glimpse into life with sickness (so much so that those with chronic illness often endearingly refer to themselves as “spoonies”). A\u00a0young… <\/p>\n

<\/div>\n

Lee mas<\/a><\/p>","protected":false},"author":1281,"featured_media":5908,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[{"url":"","title":"","desc":"","thumbnail":"","duration":"","rating":"","view_count":"","tag":"","cat":""}],"_seopress_pro_schemas_manual":null,"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1,6],"tags":[],"class_list":["post-5903","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_1544.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/5903","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/comments?post=5903"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/5903\/revisions"}],"predecessor-version":[{"id":14103,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/5903\/revisions\/14103"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/media\/5908"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/media?parent=5903"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/categories?post=5903"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/tags?post=5903"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}