{"id":447,"date":"2012-02-02T08:46:41","date_gmt":"2012-02-02T15:46:41","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=447"},"modified":"2023-12-19T01:30:43","modified_gmt":"2023-12-19T06:30:43","slug":"exciting-new-cf-drug-approval","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/es\/exciting-new-cf-drug-approval\/","title":{"rendered":"\u00a1Emocionante aprobaci\u00f3n de nuevos medicamentos para la FQ!"},"content":{"rendered":"

Hola todos,<\/p>\n

Tenemos GRANDES noticias para compartir con ustedes que nos entusiasman a todos en Emily's Entourage. A principios de esta semana, se anunci\u00f3 que la FDA aprob\u00f3 un nuevo f\u00e1rmaco, Kalydeco, que es el PRIMER f\u00e1rmaco en corregir el problema gen\u00e9tico subyacente en la fibrosis qu\u00edstica (FQ). Sin embargo, el medicamento solo ayudar\u00e1 al 4% de la poblaci\u00f3n con FQ que tiene una determinada mutaci\u00f3n gen\u00e9tica (G551D). Desafortunadamente, el 96% restante de personas que viven con FQ, incluida Emily, todav\u00eda est\u00e1n esperando el tratamiento que les salve la vida.<\/p>\n

Con esta enorme noticia, recordamos por qu\u00e9 todos nuestros esfuerzos de recaudaci\u00f3n de fondos son TAN importantes. El dinero que recaudamos financia una investigaci\u00f3n que cambia la vida como esta. Este asombroso descubrimiento nos muestra que estamos TAN cerca, pero a\u00fan no lo hemos logrado. Debemos seguir presionando y recaudando fondos en\u00e9rgicamente para que Emily y todos los dem\u00e1s con FQ tambi\u00e9n puedan beneficiarse de un tratamiento que cambia la vida. Puede ayudar haciendo una donaci\u00f3n y continuar difundiendo el mensaje de Emily's Entourage.<\/p>\n

De parte de todos nosotros en Emily's Entourage, \u00a1gracias por su continuo apoyo!<\/p>\n

-El s\u00e9quito de Emily<\/p>\n

 <\/p>\n

Lea el comunicado de prensa de CFF: https:\/\/www.cff.org\/News\/News-Archive\/2012\/FDA-Approves-Kalydeco-(VX-770)-%E2%80%94-First-Drug-That-Targets-the-Underlying-Cause-of-Cystic-Fibrosis\/<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Hola a todos: Tenemos GRANDES noticias para compartir con ustedes que nos entusiasman a todos en Emily's Entourage. A principios de esta semana, se anunci\u00f3 que la FDA aprob\u00f3 un nuevo f\u00e1rmaco, Kalydeco, que es el PRIMER f\u00e1rmaco en corregir el problema gen\u00e9tico subyacente en la fibrosis qu\u00edstica (FQ). Sin embargo, la droga ... <\/p>\n

<\/div>\n

Lee mas<\/a><\/p>","protected":false},"author":58,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[6],"tags":[],"class_list":["post-447","post","type-post","status-publish","format-standard","hentry","category-emilys-entourage-blog"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/447","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/comments?post=447"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/447\/revisions"}],"predecessor-version":[{"id":20229,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/447\/revisions\/20229"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/media?parent=447"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/categories?post=447"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/tags?post=447"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}