{"id":13074,"date":"2019-06-04T07:35:19","date_gmt":"2019-06-04T11:35:19","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13074"},"modified":"2023-12-20T05:20:55","modified_gmt":"2023-12-20T10:20:55","slug":"emily-speaks-at-the-2019-bio-international-convention-in-philadelphia","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/es\/emily-speaks-at-the-2019-bio-international-convention-in-philadelphia\/","title":{"rendered":"Emily habla en la Convenci\u00f3n Internacional BIO 2019 en Filadelfia"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Emily&#039;s Entourage (EE) asistir\u00e1 a la <a href=\"https:\/\/www.bio.org\/events\/bio-international-convention\" target=\"_blank\" rel=\"noopener noreferrer\">Convenci\u00f3n Internacional BIO 2019<\/a> en el Centro de Convenciones de Pensilvania en Filadelfia, PA. El d\u00eda 1, la cofundadora de EE, Emily Kramer-Golinkoff, fue entrevistada para <a href=\"https:\/\/youtu.be\/cyMT8o3qiT8\" target=\"_blank\" rel=\"noopener noreferrer\">Buen dia bio<\/a>, un programa de entrevistas de televisi\u00f3n transmitido en hoteles de Filadelfia y en salones de reuniones en todo el centro de convenciones durante la semana, presentado por Mike Huckman, l\u00edder de pr\u00e1ctica global, comunicaciones ejecutivas de W2O Group. En el programa de entrevistas, Emily comparti\u00f3 la perspectiva del paciente y habl\u00f3 sobre la misi\u00f3n y el trabajo que EE est\u00e1 haciendo para las mutaciones sin sentido de la fibrosis qu\u00edstica (FQ). <\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-full wp-image-13079 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n.jpg\" alt=\"\" width=\"851\" height=\"315\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n.jpg 851w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n-300x111.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n-768x284.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n-600x222.jpg 600w\" sizes=\"(max-width: 851px) 100vw, 851px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">El d\u00eda 2, Emily participar\u00e1 en el Fireside Chat titulado &quot;Comprender las voces de los pacientes: perspectiva \u00fanica sobre la atenci\u00f3n m\u00e9dica&quot; a las 11 a. M. El 4 de junio. Emily estar\u00e1 acompa\u00f1ada por Christopher Anselmo, M<\/span><span style=\"font-weight: 400;\">arket Intelligence Manager de<\/span><span style=\"font-weight: 400;\"> la Asociaci\u00f3n de Distrofia Muscular y Eve Bukowski, Vicepresidenta de Defensa del Paciente en CLCA. Esta sesi\u00f3n principal ser\u00e1 moderada por Julie Gerberding, vicepresidenta ejecutiva y directora de pacientes de Merck &amp; Co, Inc. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">El panel se centrar\u00e1 en el papel fundamental y en evoluci\u00f3n de los pacientes a lo largo de los a\u00f1os, que no solo est\u00e1n cada vez m\u00e1s involucrados en la conducci\u00f3n de su propia atenci\u00f3n m\u00e9dica, sino que tambi\u00e9n abogan incansablemente para promover la investigaci\u00f3n y el desarrollo de medicamentos y asegurar pol\u00edticas p\u00fablicas que apoyen a los pacientes. En el panel, Emily y sus colegas compartir\u00e1n sus viajes de salud, sus perspectivas sobre lo que significa ser un paciente y c\u00f3mo abogan para que los tratamientos lleguen a los pacientes m\u00e1s r\u00e1pido.<\/span><\/p>\n<p><img decoding=\"async\" class=\"size-full wp-image-13082 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg\" alt=\"\" width=\"900\" height=\"563\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1-300x188.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1-768x480.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1-600x375.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">La Convenci\u00f3n Internacional BIO es un evento anual organizado por la Organizaci\u00f3n de Innovaci\u00f3n Biotecnol\u00f3gica, que re\u00fane a m\u00e1s de 16.000 asistentes de 74 pa\u00edses y presenta m\u00e1s de 1.500 sesiones educativas. EE agradece una vez m\u00e1s tener la oportunidad de asistir y participar en esta conferencia y espera nuevas colaboraciones con organizaciones que comparten el mismo impulso para brindar terapias r\u00e1pidas y transformadoras a los pacientes. <\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Emily&#039;s Entourage (EE) asistir\u00e1 a la Convenci\u00f3n Internacional BIO 2019 en el Centro de Convenciones de Pensilvania en Filadelfia, Pensilvania. El d\u00eda 1, la cofundadora de EE, Emily Kramer-Golinkoff, fue entrevistada para Good Day Bio, un programa de entrevistas de televisi\u00f3n transmitido en hoteles de Filadelfia y en salones de reuniones en todo el centro de convenciones durante la semana, presentado por Mike ... <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/es\/emily-speaks-at-the-2019-bio-international-convention-in-philadelphia\/\" class=\"excerpt-read-more\">Lee mas<\/a><\/p>","protected":false},"author":1704,"featured_media":13082,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[93,94,98,12,99,95,103,96,102,100],"class_list":["post-13074","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-bio-international-convention","tag-bio2019","tag-christopher-anselmo","tag-emilys-entourage","tag-eve-bukowski","tag-good-day-bio","tag-life-sciences","tag-mike-huckman","tag-muscular-dystrophy","tag-philadelphia"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/13074","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/comments?post=13074"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/13074\/revisions"}],"predecessor-version":[{"id":20547,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/posts\/13074\/revisions\/20547"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/media\/13082"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/media?parent=13074"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/categories?post=13074"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/tags?post=13074"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}