{"id":16142,"date":"2021-10-15T14:01:34","date_gmt":"2021-10-15T18:01:34","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?page_id=16142"},"modified":"2021-12-10T15:04:58","modified_gmt":"2021-12-10T20:04:58","slug":"cf-crew","status":"publish","type":"page","link":"https:\/\/www.emilysentourage.org\/es\/cf-crew\/","title":{"rendered":"\u00danase a la tripulaci\u00f3n de CureFinders"},"content":{"rendered":"<p><span style=\"font-weight: 400;\"><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-16212\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-300x100.png\" alt=\"\" width=\"1385\" height=\"462\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-300x100.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-1024x341.png 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-768x256.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-1536x512.png 1536w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-2048x683.png 2048w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-18x6.png 18w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CF-Crew-webpage-header-600x200.png 600w\" sizes=\"(max-width: 1385px) 100vw, 1385px\" \/><\/span><\/p>\n<p><span style=\"font-weight: 400;\">No hay nadie con un inter\u00e9s personal m\u00e1s profundo en el progreso r\u00e1pido de la 10% final de la comunidad de la fibrosis qu\u00edstica (FQ) que aquellos que viven con la enfermedad y las personas que los aman. El CureFinders Crew (CF Crew) se cre\u00f3 pensando en usted: para proporcionar un espacio donde la comunidad de FQ pueda reunirse en apoyo de la misi\u00f3n de Emily&#039;s Entourage (EE) de acelerar la investigaci\u00f3n y el desarrollo de f\u00e1rmacos que salvan vidas para el 10% final de la comunidad de FQ. incluidos aquellos con mutaciones sin sentido de la FQ.<\/span><\/p>\n<blockquote><p><span style=\"font-weight: 400;\">Nunca subestimes tu voz, tu cerebro, tu creatividad, tus ideas y tu poder. Mueven monta\u00f1as. - Emily Kramer-Golinkoff, cofundadora de Emily&#039;s Entourage<\/span><\/p><\/blockquote>\n<h3><strong>\u00bfPor qu\u00e9 unirse al CF Crew?<\/strong><\/h3>\n<h3><strong><img decoding=\"async\" class=\"alignright wp-image-16143\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6.png\" alt=\"\" width=\"400\" height=\"372\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6.png 959w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-300x279.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-768x715.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-13x12.png 13w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Quote-6-600x559.png 600w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/strong><\/h3>\n<p><span style=\"font-weight: 400;\">Emily&#039;s Entourage cree que NADIE debe quedarse atr\u00e1s y que cada persona con FQ merece una esperanza realista de un futuro y un respiro profundo. Como parte de CF Crew, puede ayudarnos a lograr el cambio tan necesario para el 10% final compartiendo su historia y participando en su red. Usted tiene el poder de marcar la diferencia y ayudar a financiar nuestra inversi\u00f3n agresiva en investigaci\u00f3n y desarrollo de f\u00e1rmacos, acerc\u00e1ndonos a nuestro objetivo compartido de avances r\u00e1pidos para 100% de la comunidad de la FQ: <b>nadie se qued\u00f3 atr\u00e1s<\/b>.&nbsp;<\/span><\/p>\n<h3><strong>\u00bfQui\u00e9n puede participar?<\/strong><\/h3>\n<p><span style=\"font-weight: 400;\">El CF Crew est\u00e1 abierto a cualquier persona que tenga una conexi\u00f3n con la FQ, ya sea que forme parte del 10% final o del 90% que haya experimentado, de primera mano, el impacto que cambia la vida de una terapia dirigida a mutaciones.&nbsp;<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Usted se unir\u00e1 a un grupo especial de familias de FQ que hacen cambios y que mueven monta\u00f1as y que est\u00e1n trabajando para lograr avances r\u00e1pidos y radicales para el 10% final. Y, como usted sabe m\u00e1s \u00edntimamente que nadie, \u00a1ese progreso no puede llegar lo suficientemente pronto!<\/span><\/p>\n<p style=\"text-align: center;\">&nbsp;<a class=\"fasc-button fasc-size-large fasc-type-flat fasc-rounded-medium fasc-style-bold\" style=\"background-color: #462561; color: #ffffff;\" target=\"_blank\" href=\"https:\/\/www.emilysentourage.org\/es\/contact-us\/\" rel=\"noopener\">CONT\u00c1CTENOS PARA OBTENER M\u00c1S INFORMACI\u00d3N<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>There is nobody with a deeper vested interest in fast progress for the final 10% of the cystic fibrosis (CF) community than those living with the disease and the people who love them. The CureFinders Crew (CF Crew) was created with you in mind \u2014 to provide a space where the CF community can come&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/es\/cf-crew\/\" class=\"excerpt-read-more\">Lee mas<\/a><\/p>","protected":false},"author":1281,"featured_media":16211,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"","_seopress_titles_title":"Emily&#039;s Entourage &gt;&gt; Join the CureFinders Crew","_seopress_titles_desc":"The CureFinders Crew (CF Crew) was created with the cystic fibrosis community in mind \u2014 to provide a space where they can come together in support of Emily\u2019s Entourage\u2019s (EE\u2019s) mission to speed lifesaving research and drug development for the final 10% of the CF community.","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-16142","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/pages\/16142","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/comments?post=16142"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/pages\/16142\/revisions"}],"predecessor-version":[{"id":16447,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/pages\/16142\/revisions\/16447"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/media\/16211"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/es\/wp-json\/wp\/v2\/media?parent=16142"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}