June 15, 2017
The Wawa Foundation Announces The Four Finalists For The Wawa Foundation “Hero Award”: Calls For Public Vote To Determine Hero Award Recipient


May 25, 2017
Startup Talee Bio is Seeking a Cure For Cystic Fibrosis


Spring 2017
Rare Revolution “Turns Purple” For Emily’s Entourage


Voices of CF: Emily Kramer-Golinkoff Is All In


Emily and her Entourage Battle Cystic Fibrosis (CF) in Philly


Turning Patient Engagement into Scientific Disruption


Woman with Cystic Fibrosis uses the power of social media to find her own cure


A Champion of Change for Cystic Fibrosis


Bala Cynwyd Woman Not Letting Cystic Fibrosis Slow Her Down


Emily’s Entourage: How It All Started


She raised millions for the cystic fibrosis breakthrough she needs


Penn Alumna and Employee Fights Valiantly Against Rare Form of Disease


1/22/16 – Yahoo Health, She’s 31 and Has Advanced Cystic Fibrosis – But Emily (and Her ‘Entourage’) Won’t Give Up

1/15/16 – Philadelphia Style, Why This Main Line Non-Profit Is Getting Support From The White House

1/11/16 – The Doctors, Woman Searches For A Cure For Cystic Fibrosis 

1/7/16 – People Magazine, Meet The Woman Who Is Battling A Rare Form of Cystic Fibrosis

1/7/16 – Time Magazine, Woman Races To Find A Cure For Her Own Disease

12/4/15 – Modern Loss, I Don’t Wait

10/31/15 – The Arizona Daily Wildcat, Campus club raises awareness of cystic fibrosis realities

10/20/15 – BetterWorldians Radio, Episode: Emily’s Entourage (Podcast)

10/17/15 – Stanford Medicine X 2015, On Interdisciplinary Collaboration to Spark New Cures (Video)

Oct 2015 – Main Line Today, Power Women: 23 Ladies Who Are Ready To Lead

9/17/15 – The Philadelphia Citizen, Meet The Disrupter: Emily Kramer-Golinkoff

9/14/15 – Philadelphia Magazine’s Be Well Philly, Meet a Health Hero: Emily Kramer-Golinkoff

7/16/15 – NBC10, Pennsylvania Woman Brings Her ‘Entourage’ of Change to White House (Video)

7/16/15 – NBC10, ‘Emily’s Entourage’ Takes a Stand Against Cystic Fibrosis (Video)

7/9/15 – Jewish Exponent, Community Newsmaker: Emily Kramer-Golinkoff

7/8/15 – CBS Philly, Local Woman Named White House ‘Champion Of Change’

7/8/15 – NBC10 Philadelphia, ‘Emily’s Entourage’ Gets White House Honor

7/7/15 – CBS Philly, Local Woman To Be Honored At White House For Her Efforts To Raise Awareness About Cystic Fibrosis (Video)

7/6/15 –, Bala Cynwyd Woman to be honored at White House

7/6/15 – PhillyVoice, Montco woman to be honored by White House

3/13/15 – Tulane University New Wave, Tulane keeps up the fight against cystic fibrosis

2/27/15 – The Philadelphia Inquirer, World Rare Disease Day: A call for earlier diagnosis and treatment

2/6/15 – Penn Medicine News Blog, Focus on Rare Diseases is Common at Penn Medicine

1/29/15 – Jewish Exponent, Emily’s Entourage Shows Up in Force

1/28/15 – Main Line Times, Emily’s Entourage ‘birthday’ gala sets new records, spurs CF research

1/25/15 – Main Line Times, Emily’s Entourage ‘birthday’ gala sets new records, spurs CF research

12/11/14 – The Philadelphia Inquirer, Emily’s list

Oct 2014 – PharmaTimes Magazine, “Everyone Deserves a Deep Breath” (p. 50)

9/16/14 – Healthcare IT News, Patient story kicks off Health IT Week

9/15/14 – ONC Consumer Health IT Summit, A Patient Perspective: How Technology Has Transformed My Health and Care (Video)

Aug 2014 – Journal of General Internal Medicine, A Lesson in Participatory Research for a Rare Mutation of Cystic Fibrosis

7/16/14 – MHA@GW Blog, TEDMED #GreatChallenges: Examining the Case for Patient Activation Measures

5/15/14 – Stanford Medicine X Live!, Designing for Social Connection (Video)

5/13/14 – Just Talking Podcast, With Emily Kramer-Golinkoff

5/5/14 – The Huffington Post Blog, For Cystic Fibrosis Awareness Month, the Story of a Mother’s Fight to Save Her Daughter’s Life

4/14/14 – The Huffington Post Blog, Emily’s Entourage: College Students Rally to Cure Rare Form of Cystic Fibrosis

4/3/14 – HuffPost Live, Students Fight Cystic Fibrosis (Video)

3/14/14 – Tulane Green Wave, Former, Current Student-Athletes Rally Around Emily’s Entourage

2/28/14 – Philadelphia Inquirer, Emily’s Entourage seeks cure for rare form of cystic fibrosis

2/27/14 – The Pennsylvania Gazette, A Matter of Life and Breath

10/15/13 – Stanford Medicine X 2013, The Networked Patient: A Collaborative Approach to Resuscitating Healthcare

9/25/13 – Huffington Post, What Today’s Youth Can Teach Us About the Power and the Potential of New Media

6/5/13 – Fox29 Good Day, Meet the Woman Behind Emily’s Entourage (Video)

5/28/13 – Women’s Voices for Change, Liza Kramer: A Mother Who’s Made a Difference

5/23/13 – USTA Middle States Featured News, Emily’s Entourage 

4/18/13 – The Tulane Hullabaloo, Emily’s Entourage event raises campus awareness of cystic fibrosis

4/11/13 – Tulane Her Campus, Campus Cutie Special: Coby Kramer-Golinkoff on Emily’s Entourage

3/19/13 – The Annenberg School for Communication at the University of Pennsylvania Press Release, Emily Kramer-Golinkoff (C ’07), founder of “Emily’s Entourage,” to be undergraduate graduation speaker

3/7/13 – SeattleMamaDoc Blog, How To Be An Empowered Patient: Emily’s Entourage 

2/11/13 – Washington Square News, NYU Group Emily’s Entourage bands together to fight cystic fibrosis

12/4/12 – Lower Merion School District’s Photo of the Day, LMSD Students Join “Emily’s Entourage” to raise funds, support alumna

12/12/12 – Jewish Exponent, Breathing Life Into the Battle with Cystic Fibrosis

12/1/12 – CBS Philly, Hundreds to Gather for Cystic Fibrosis Fundraiser in Philly

Fall 2012 – Sigma Phil Epsilon’s SigEp Journal, Brother turns to social media to help cure cystic fibrosis

6/4/12 – TEDxLMSD, Youth Activism in the Era of Social Media: Emily’s Entourage

6/4/12 – Quarterlette, Emily’s Entourage

5/15/12 – sportsNOLATulane’s Kramer-Golinkoff Inspired by Sister’s Battle

5/7/12 – Tulane University’s Freeman Blog, Cystic fibrosis is special cause for one Freeman student

5/7/12 – Tulane University’s New Wave Newsletter, The Insider: Students join Emily’s Entourage

4/19/12 – WDSU NewsChannel 6, Entourage Raises Money For Cystic Fibrosis (Video)

4/19/12 – WDSU NewsChannel 6,  Entourage On Mission To Raise Money For Cystic Fibrosis

12/19/11 – Lower Merion High School News, LM jr. honors sister raising funds, awareness for Cystic Fibrosis

12/19/11 – FFJD blog, FFJD Giving: Emily’s Entourage 

12/12/11 – UPenn Dueling Tampons Blog, Heartfelt story of one Penn Alum’s battle with Cystic Fibrosis

12/9/11 – NBC10 Philadelphia, Local Girl With Cystic Fibrosis is Making a Difference

12/9/11 – The Tulane Hullabaloo, Battles worth winning