During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Ela Castillo, an adult with... Read More
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Gareth Davies, the parent of a child... Read More
Last month, Emily’s Entourage’s (EE) Chief Scientific Officer, Chandra Ghose, PhD, traveled to attend the 18th European Cystic Fibrosis Society (ECFS) Basic Science Conference, held from March 29 to April... Read More
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Drew Dotson, an adult with CF. “My... Read More
May is an important time of the year for us at Emily’s Entourage (EE). It marks Cystic Fibrosis (CF) Awareness Month, a time for the community to band together to... Read More
At Emily’s Entourage (EE), we realize that what drives disease progression and mortality in people with cystic fibrosis (CF) — and what threatens their ability to wait for transformative therapies... Read More
Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day on February 28. It is a time for... Read More
Back in-person for the first time since 2019, the invite-only reception brought together members of the cystic fibrosis (CF) community to celebrate EE’s achievements to date, recognize and honor the... Read More